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  1. Hoopoe
    Post

    Whole blood human transcriptome and virome analysis of ME/CFS patients experiencing PEM following cardiopulmonary exercise testing, 2019, Chiu et al

    I am revisiting this. It seems notable because the people assessing the 2-day CPET results were blinded. 8 of 14 ME/CFS patients showing reduced...
    Post by: Hoopoe, Jul 24, 2019 in forum: ME/CFS research
  2. Hoopoe
    Post

    Piezogenic papules in Ehlers-Danlos and ME/CFS?

    Many patients on that twitter thread are saying they have these as well. Do we all have EDS or is that just a nonspecific sign? Edit: Trish was...
    Post by: Hoopoe, Jul 24, 2019 in forum: General and other signs and symptoms
  3. Hoopoe
    Thread

    Piezogenic papules in Ehlers-Danlos and ME/CFS?

    I saw this on twitter today. To my surprise I have of few these papules on each side. [MEDIA]
    Thread by: Hoopoe, Jul 24, 2019, 7 replies, in forum: General and other signs and symptoms
  4. Hoopoe
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    I also feel that patients often have what are probably comorbidites like as of yet poorly understood gut issues or strange reactions to food. I...
    Post by: Hoopoe, Jul 24, 2019 in forum: MEpedia
  5. Hoopoe
    Post

    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    I'm not quite sure where I stand on this. I think we need to test all at least remotely plausible ideas simply because we haven't made much...
    Post by: Hoopoe, Jul 24, 2019 in forum: MEpedia
  6. Hoopoe
    Post

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    I'm sure there is no discussion whatsoever about the problem of bias and subjective outcomes. Can anyone check?
    Post by: Hoopoe, Jul 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Hoopoe
    Post

    Predictors of Response to Cognitive-Behavioral Therapy for Body Dysmorphic Disorder (2019) Greenberg et al

    How would that look like? Are you ready to change? The treatment is fantastically effective. Prepare to live a new life free of illness. All...
    Post by: Hoopoe, Jul 20, 2019 in forum: Other psychosomatic news and research
  8. Hoopoe
    Post

    Pathological Mechanisms Underlying Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2019, Fisher et al.

    Fisher is that Aussie mitochondria expert, right? He seemed to really know what he was talking about.
    Post by: Hoopoe, Jul 17, 2019 in forum: ME/CFS research
  9. Hoopoe
    Post

    Chapter 29 - Clinical neurophysiology of postural tachycardia syndrome, 2019, Sandroni et al

    Being aware of the pounding heart is not hypervigilance. It's not a choice. It's no different than being aware of pain. You can't just choose to...
    Post by: Hoopoe, Jul 17, 2019 in forum: Cardiovascular and exercise physiology (CPET)
  10. Hoopoe
    Post

    Genome-wide association study identifies eight risk loci and implicates metabo-psychiatric origins for anorexia nervosa

    Correct me if I'm wrong. The negative correlations should be expected or are least unsurprising, considering that anorexia nervosa is defined by...
    Post by: Hoopoe, Jul 15, 2019 in forum: Other health news and research
  11. Hoopoe
    Post

    Study finds psychiatric diagnosis to be ‘scientifically meaningless’

    Everything is due to trauma. Isn't this basically Freud again? Maybe with less sex obsession.
    Post by: Hoopoe, Jul 12, 2019 in forum: Other health news and research
  12. Hoopoe
    Post

    Suggest a name for Chris Ponting's ME GWAS project!

    ME genome project. There was the human genome project, a big success. Now there is the ME genome project, hopefully also a big success. That's...
    Post by: Hoopoe, Jul 11, 2019 in forum: General ME/CFS news
  13. Hoopoe
    Post

    Researchers propose deep trawl of DNA to help uncover the causes of ME/CFS (Simon McG blog)

    Will patients from outside the UK be able to participate? Have you considered working with researchers in other countries to reach the 20k target...
    Post by: Hoopoe, Jul 11, 2019 in forum: ME/CFS research news
  14. Hoopoe
    Post

    ME Epidemiology - prevalence and peak ages of onset

    If the peak in teenage is due to hormones, and the peak in the 30's is due to something else, that might explain why there are two peaks.
    Post by: Hoopoe, Jul 9, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  15. Hoopoe
    Post

    ME Epidemiology - prevalence and peak ages of onset

    I looked at how sex hormones change with age and it didn't fit the peak in the 30's well. If I remember right the hormonal changes are more...
    Post by: Hoopoe, Jul 9, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  16. Hoopoe
    Post

    ME Epidemiology - prevalence and peak ages of onset

    Is it because the biochemistry in every decade of life is distinct, and the biochemistry of people in their 30's increases vulnerability against ME?
    Post by: Hoopoe, Jul 9, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  17. Hoopoe
    Post

    The EU wants to know what research objectives are important

    It is not so easy to effectively communicate the situation we're in with less than 5000 words. You're touching an important angle here. The way...
    Post by: Hoopoe, Jul 8, 2019 in forum: General Advocacy Discussions
  18. Hoopoe
    Thread

    The EU wants to know what research objectives are important

    The consultation will collect input from across Europe and beyond. The inputs received will inform the work to prepare a ‘Strategic Plan’ for...
    Thread by: Hoopoe, Jul 8, 2019, 2 replies, in forum: General Advocacy Discussions
  19. Hoopoe
    Post

    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    Maybe in some patients the body reacts by trying to compensate with increased nutrient intake, in others maybe it reacts by reducing energy...
    Post by: Hoopoe, Jul 8, 2019 in forum: ME/CFS research
  20. Hoopoe
    Post

    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    I have the same reaction. Eating seems to compensate a little bit. My mental model of this was hypometabolism in the sense of lacking energy and...
    Post by: Hoopoe, Jul 8, 2019 in forum: ME/CFS research
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