I am revisiting this. It seems notable because the people assessing the 2-day CPET results were blinded. 8 of 14 ME/CFS patients showing reduced...
Many patients on that twitter thread are saying they have these as well. Do we all have EDS or is that just a nonspecific sign? Edit: Trish was...
I saw this on twitter today. To my surprise I have of few these papules on each side. [MEDIA]
I also feel that patients often have what are probably comorbidites like as of yet poorly understood gut issues or strange reactions to food. I...
I'm not quite sure where I stand on this. I think we need to test all at least remotely plausible ideas simply because we haven't made much...
I'm sure there is no discussion whatsoever about the problem of bias and subjective outcomes. Can anyone check?
How would that look like? Are you ready to change? The treatment is fantastically effective. Prepare to live a new life free of illness. All...
Fisher is that Aussie mitochondria expert, right? He seemed to really know what he was talking about.
Being aware of the pounding heart is not hypervigilance. It's not a choice. It's no different than being aware of pain. You can't just choose to...
Correct me if I'm wrong. The negative correlations should be expected or are least unsurprising, considering that anorexia nervosa is defined by...
Everything is due to trauma. Isn't this basically Freud again? Maybe with less sex obsession.
ME genome project. There was the human genome project, a big success. Now there is the ME genome project, hopefully also a big success. That's...
Will patients from outside the UK be able to participate? Have you considered working with researchers in other countries to reach the 20k target...
If the peak in teenage is due to hormones, and the peak in the 30's is due to something else, that might explain why there are two peaks.
I looked at how sex hormones change with age and it didn't fit the peak in the 30's well. If I remember right the hormonal changes are more...
Is it because the biochemistry in every decade of life is distinct, and the biochemistry of people in their 30's increases vulnerability against ME?
It is not so easy to effectively communicate the situation we're in with less than 5000 words. You're touching an important angle here. The way...
The consultation will collect input from across Europe and beyond. The inputs received will inform the work to prepare a ‘Strategic Plan’ for...
Maybe in some patients the body reacts by trying to compensate with increased nutrient intake, in others maybe it reacts by reducing energy...
I have the same reaction. Eating seems to compensate a little bit. My mental model of this was hypometabolism in the sense of lacking energy and...
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