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my guess is P9-5 is related to Derick Wade. Of course Derick Wade is also a consultant at Oxford University hospitals, as is Michael Sharpe. https://www.ouh.nhs.uk/services/consultants/ He did a webinar on Rehab and covid-19 couple of slides: https://player.rcplondon.ac.uk/video/1_gkfag0cf

Continue reading: https://bit.ly/3h7qFIA

https://www.mdpi.com/1010-660X/56/12/726?type=check_update&version=2

(and Wessely had already got the name changed from ME to CFS in 1996)

it's funny how this keeps coming up as an explanation for symptoms like brainfog, and yet one of the main objections by some to using ME as a name was because they said there was no neuroinflammation. How are they now able to say it's what is causing the problems for covid-19 patients?

don't know if this has been posted already or if this is the right thread. Persistent symptoms after Covid-19: qualitative study of 114 “long Covid” patients and draft quality principles for services https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-020-06001-y

more info on ExACT (due to finish this month) https://research-information.bris.ac.uk/en/projects/exploring-act-as-a-treatment-for-children-and-young-people-with-c eta: given that a 'significant proportion' have not 'recovered' after a year of GET and CBT which have now been removed as...

Just one brief thing prompted by Crawleys new proposed trial on ACT; although CBT is gone into at great length in the new guideline, saying that it is not a cure, or treatment for ME/CFS, is there anywhere that it says that this applies to all psychotherapy? Or is it going to be OK for clinics...

isn't this the way virus' are supposed to 'work'? I'm thinking of the 1918 pandemic where presumably the virus eventually mutated and stopped killing most of its hosts. (not sure of the timeline but wasn't it within 2-3 years). I'm curious as to whether the introduction of vaccines in this...

yes she says it was called 'hysterical paralysis' in Unrest (not sure if those are her exact words). This article includes a little about the history, but also a first hand report of the authors experience in getting her MS diagnosis...

I wonder if Simon Cowell might claim royalties for use of the name?

https://www.bristol.ac.uk/academic-child-health/research/research/cfsme/exfactr-study/ ACT, 'new' replacement for CBT. A favourite of Trudie Chalder. @dave30th

Administration Manager https://elxw.fa.em3.oraclecloud.com/hcmUI/CandidateExperience/en/sites/CX_1001/job/168/?utm_medium=jobshare

https://marlin-prod.literatumonline.com/pb-assets/Lancet/pdfs/S0140673620327057.pdf

Excellent letter. It would be good to have a 'standardised' version to send/quote to any similar publication/ author of such false statements , particularly here in the UK.

Long COVID: 'I thought being young and fit would protect me - I was wrong' https://news.sky.com/story/long-covid-sufferers-to-be-offered-help-at-more-than-60-clinics-in-england-12165947