I'm not sure that it is 'not a nice letter'. One of the links in the letter is to a paper that referred to both CFS and FND as neurological...
We have these threads that may be appropriate for some of your posts: Long Covid epidemiology (prevalence, incidence, recovery rates) Long Covid...
Yes. I just wasn't sure if Julia Newton retained some ongoing responsibility too. It appears not, so all the more reason to give that PACE page...
A number of earlier threads have commented on AfME documents and webpages: 'Pacing for people with M.E.' Action for ME booklet - revised and...
Sonya Chowdhury's response to the complaint looks good and I agree that AfME have better things to do now than deal with this complaint. But, I...
https://www.psychologytoday.com/us/blog/patient-zero/201812/the-diagnosis-and-treatment-chronic-pain Robert C. Smith is banging the same drum as...
:rofl: I won't comment on the others, but not being able to play golf is not one of the tremendous losses in my life.
Thanks Michiel. What a shame this is paywalled. I wonder if the people who go on to develop chronic Q fever experience Q-fever fatigue syndrome...
We have threads on two papers by Dr Bruce Patterson: Persistence of SARS CoV-2 S1 Protein in CD16+ Monocytes in Post-Acute Sequelae of COVID-19...
Partly answering my own questions: https://nyulangone.org/conditions/compartment-syndrome-in-adults/diagnosis So, you could anaesthetise the...
It is interesting. I think the authors should be commended for thinking beyond a hand-wavy central sensitisation theory. The relationship...
True, but there have been successes. HPV is one: The fact that people realised that a virus that infects nearly everyone can cause cancer...
I'm sure that there is much that is arguable or wrong in that article. For example: Even I, being a bit open to the idea that pathogens...
Great stuff @FMMM1. Relevant to this call for appropriate research outcomes: NIHR's funding of the development of standard research outcomes for...
You and @rvallee are probably right, certainly about the futility of dealing with stupid people. But, at least on the days when the IACFSME isn't...
I understand that most good scientists would not want to spend a lot of time sitting in a committee trying to convince people who don't...
I won't write here what I said aloud when I read the sentence I bolded. Possibly trying to make that study have a good outcome will be very...
I've been banging on about how the development of standardised research outcomes in treatment and illness course studies is really important for...
There was no group of people who have had Covid-19 but who don't have lingering symptoms. The healthy controls had to be seronegative. Being...
Figure 3 (as best I can work out - the charts in Figure 2 are just leading up to the conclusion presented in Figure 3) So, here again, there are...
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