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That looks like a screenshot of the reply from Sharpe on the Times e-version. If anyone wants to tweet response to Sharpe's: Someone should tell Professor Jonathan... I would love to say: If it was well known that there is no other measure why did PACE set up actometry and abandon it when a...

I am not sure I have seethe whole article? All I have seen is the screenshot on the previous thread page. Is there more? I do not have access.

I don't think I can be bothered. I have complained to O'Neill.

It looks as if an editor has gerrymandered this. It is opaque as to what my comment refers to.

But I don't think that is the case @dave30th . I push back on the theoretical framework because it is applied without adequate corroboration from evidence - in fact the evidence makes it implausible. Whether or not it involves psychology is not relevant. There is also a lot of confusion over...

Now, now, you wouldn't want to be considered Dutchist would you? These people are obviously right. When I read "Learning to feel tired..." through my exteroception Hey presto, I feel fatigue coming on, cos I've read this stuff before . It isn't associative though, it just makes me feel tired...

Yes, with @Peter Trewhitt , I think exercise is activity done for the sake of doing it - that's about all. There seems to be a simple absurdity in relation to exercise for ME. Someone with ME is more or less by definition someone who cannot, or struggles to, manage the activities needed for the...

That is how I have seen services run by people like Amolok Bansal and Luis Nacul. I appreciate that these may be the exceptions but I don't see it being a good idea to shut everything down. Because that simply would not happen because nobody would have any incentive to start. If you advertised...

I wouldn't get too excited about an odd report like that.

I don't see this as likely and I am not sure that it is as simple as that. If there is going to be any sort of forward-looking care system for ME/CFS that involves people with specialised experience (Caroline Kingdon or Luis Nacul for instance) who understand the issues around diagnosis and...

I have never heard of that. As far as I am aware there is no significant connection of any sort known.

As far as I am aware EBV infection is not associated with RA in any other sense that most people are infected with EBV. Mice should not be subjected to this sort of thing.

Should that be rephrased:we would be surprised if we do not see a press briefing from the Science Media Centre on these guidelines next week, with quotes from the usual suspects or people with similar views. ;)

Reminds me of: Chico: “Naw. I dunna like it" Groucho:The first part of the party of the first part shall be known in this contract as the first part of the party of the first part shall be known in this contract-- Look, why should we quarrel about a thing like this? We'll take it right out, eh?”

Another thought - which someone may already have noted: In 2001/2 it would have been convenient for the assessment of the evidence to be promising but marred by methodological flaws. That would provide the perfect justification for the embryonic PACE. By 2007 the caveats would be an...

Yes, I think this would reasonably be regarded as unethical practice. I keep being tempted to write a rapid response to the BMJ news piece but I think best not. So there are two answers why the evidence became unsupportive. Documents at the time show that it was not supportive even then, and...

You are several steps ahead of me @Trish. I missed that you were responding to #1004.

I think this was before NICE took to using GRADE. As to how decisions were made then I have no idea. I guess the 2007 report will contain assessments of trials of some sort.

There is an interesting answer to this, maybe - the evidence became unsupportive because in the intervening period there was the 'definitive' PACE trial - which was unsupportive. In 2007 the 'evidence' was based on some small inconclusive studies. By 2020 we had seen a large multi-arm trial...

I agree with the points in the blog. 'Dysregulation' is a fairy story. Modern medicine is NOT THEORY-DRIVEN. Physiotherapists need to come to terms with that. It is evidence driven. If there is no reliable evidence from interventional studies then the evidence should come from experienced...