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What a complete load of tosh.

From chronic fatigue to long COVID Article in Royal College of Nursing magazine The title and intro do the usual "chronic fatigue" thing, but really CFS. https://www.rcn.org.uk/magazines/opinion/2021/september/long-covid-19-experience-chronic-fatigue

Is this simply a matter of checking prevalence of JH in the general population, versus prevalence among those newly diagnosed with ME/CFS? Or is it more subtle than that?

Wouldn't be surprised. I think the fashion during some periods meant someone used to wind the cords in very tight, effectively winching their waistline in far smaller than nature intended. Organs must have been getting unnaturally and significantly displaced I imagine - heaven knows what that...

Seeing this, I think it is the same kind of thing that our removal men used some years back, when they started to load and unload some of the heavier things.

That's interesting. I'm sure there's a clue in here somewhere.

Yes, CBT as a treatment for ME/CFS is simply bogus. Even if (big if) there are any comorbidities that CBT might be applied to, similar to might be the case with comorbidities encountered by cancer sufferers for example, the comorbidities are distinct and separate from ME/CFS, and have no part in...

Yes, although very good overall, I also feel that speaking of "post-exertion fatigue" is a bit of an own goal, given how hard we constantly strive to impress upon others how PEM is absolutely not just about fatigue. When this hits my wife she basically feels like complete sh*t. Although the...

They do mean the same thing in reality, but the whole notion of MUS allows BPS'ites to imply (and they do) that MUS is synonymous with there being no underlying physical problem, ergo it must be the patient's unhelpful beliefs about their health that is the problem. Whereas the truth often being...

Nonetheless, making the distinction between "unexplained" versus "not yet explained" is very important. There is so much conflation and ambiguity touted around, to deliberately mislead - medically unexplained is so easy to then morph into meaning there is no physical illness, whereas it is much...

Sounds like you may be similar to my wife @Keela Too. We have a lovely dog, and my wife does something similar with her. My wife cannot run nor can she walk as fast as would be helpful, but she gets a real buzz from it. It is also clear that her waning energy has another problem, trying to think...

Long odds I imagine.

Ye Gods we can all come up with a few suggestions for that! As @Sly Saint says, cut of funding to the BPS researchers would be a big start.

Isn't it just. In a perverse way it is almost heartening, because it so clearly illustrates to anyone the absurd spin these people put on these things. "Completed treatment", early or otherwise, can only mean ... the treatment was completed. Yet they make it abundantly clear those patients did...

Not that strange really, given the mindset of the investigators. The following depends heavily on what they recognise (or more to the point do not recognise) as adverse events. Invariably if patients symptoms 'simply' get worse, that is not recognised as an adverse event. Just interpreted that...

Oh ... err ... yes, sorry David ... of course! It's part of the pseudo-scientific method isn't it :rolleyes: - how else could you get the results you want. Blindly assuming in unblinded trials. To me this aspect of this study epitomises what we have been banging on about in the...

[my bold] That's a very coy way of describing those who dropped out, and could be the most salient issue. Of those receiving GET almost 22% of them disappeared off the radar, and nothing in the study - as usual! - gives any thought to the possibility their health may have declined due to GET...

Includes discussing Clock study ...

Should this be brought to Carol Monaghan's attention? Though I imagine she is likely already aware of it anyway.

"probably" ? This seems like another backtrack in line with the current trend. Previously they have always asserted it is safe if properly administered.