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  1. TiredSam

    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    Breathing as a treatment for ME is a thing, recommended by some familiar names (Lapp, Cheney ... ): https://www.healthrising.org/forums/resources/breathing-techniques-for-chronic-fatigue-syndrome-and-fibromyalgia.495/ I thought I'd better give it a go about a year ago so downloaded an app and...
  2. TiredSam

    Concerns about Cochrane

    Oh yes. We'd have to win on this criterion.
  3. TiredSam

    Frequent IgG subclass and mannose binding lectin deficiency in patients with CFS, 2015, Guenther, Scheibenbogen et al

    Permit me to quote from part 4 of my blog, and my discussion with Dr Hanitsch (one of the authors of the above paper):
  4. TiredSam

    Frequent IgG subclass and mannose binding lectin deficiency in patients with CFS, 2015, Guenther, Scheibenbogen et al

    3 of those authors are from the Charite in Berlin, where the CFS department is based in the immunology department. One of them gave me my diagnosis. Before I went to the Charite, I had to confirm that I was more susceptible to infections, which I felt was rather unfair to those CFS sufferers who...
  5. TiredSam

    Open Medicine Foundation (OMF)

    Well that makes it 5 years since OMF started regularly spreading messages of hope. Open Medicine Foundation (OMF)
  6. TiredSam

    News from Germany

    I may have to move from the Barmer.
  7. TiredSam

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Many ME sufferers can't interact with the health service due to fear of death. Many of us can't go into a hospital and feel safe that we're actually going to come out alive, and even if we do, there's a very real threat that what remained of our health will have been ruined. Exactly who poses a...
  8. TiredSam

    I AM MADELINE podcast series

    She talks about mitochondrial disorder, Lucinda Bateman is interviewed. Madeline's treatments include an intravenous vitamin cocktail and expensive "naturopathic" remedies. I'm suspicious of any claims to know what causes ME, and am very sceptical of naturopathic remedies and supplements etc...
  9. TiredSam

    I AM MADELINE podcast series

    I've just started listening to this, and have listened to the first two episodes. It's absolutely excellent and seems to cover a lot of ground well, the history of ME, the history of hysteria. I wasn't sure at the start, also about how the illness and treatments are described, but this is...
  10. TiredSam

    British Psychological Society: Development and promotion of valid psychological screening to predict chronicity, post COVID-19 infection, 2021

    Shall we research whether there's a relationship between personality characteristics and cancer? Oh, sorry, that one's been done by Eysenck. And then checked here: https://pubmed.ncbi.nlm.nih.gov/12783934/ Well ok then, how about stomach ulcers and personality? Or something? Anything? Long...
  11. TiredSam

    BPS attempts at psychologizing Long Covid

    His brain isn't, it's completely unable to deal with complexity. Simple answers plucked out of thin air seems to be the most he can manage. Although I suppose his brain could be the most complex thing in his universe.
  12. TiredSam

    Why do BPS proponents keep ignoring the evidence against their ideas?

    I know two trained psychologists like that. Both as sweet as you could ever meet. I shudder at the harm they're doing. To answer the question posed in the thread title, the BPS crew consider being subjected to the rules of evidence and the scientific method as an affront. They don't believe...
  13. TiredSam

    'A life I can cope with'. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME, Clark et al., 2021

    I think I've mentioned it before - I had a lifelong paralyzing phobia of spiders, which I only managed to cure a year or so ago in my mid-fifties. I downloaded a CBT app and used it for a few weeks. The main part was a series of pictures, progressing from cartoon spiders to tiny ones to bigger...
  14. TiredSam

    Video: Phil Murrays ME/CFS full recovery story & call for more research funding

    Very pleased about your recovery @phil_in_bristol, and thanks for talking openly about it and sharing. I'm in my 8th year and have made great progress with pacing, although my progress seems to have reached a plateau which is nowhere near recovery but I manage to feel well most of the time. I...
  15. TiredSam

    Long Covid epidemiology (prevalence, incidence, recovery rates)

    I thought Sue Lawley cleared that up?
  16. TiredSam

    Greenberg's study on power posing

    Some of my students have found Amy Cuddy's powerpose TED talk very helpful. One of them gave a presentation about it once. I tried to tell them that there was no evidence for it, but they are all studying a subject where evidence doesn't matter anyway (cultural studies) so there was just an...
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