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The certainty of the authors that patients don't have anything physically wrong, the idea that a convincingly performed physical examination will provide sufficient reassurance to the patient, the packaging up of it all as an online course so medical professionals can have their prejudices...

There was a recent study, I think an Italian one of Long Covid that reported the results of a survey measuring general health by each question. It added a lot of richness to the results, highlighting which specific areas differed from controls. As well as the Likert scale issue being...

Oh, they have a very strong concept of the worst patients, that's the problem. :) It's those damn people with 'severe ME/CFS' who just stay sick to spite the clinicians; they don't want to get better.

There are two services relevant to ME/CFS run by the Newcastle-upon-Tyne Hospital Trust: The Chronic Fatigue Syndrome (CFS) /ME therapy psychology service assesses and treats patients with Chronic fatigue syndrome/ME. The CRESTA Fatigue clinic cares for people who experience symptoms of chronic...

This paper and the Health Rising blog about it will be the subject of a Discussion Group webinar by the Massachusetts ME/CFS RM Association on Dec 14 2021 More here USA: Massachusetts ME/CFS & FM Association news

We have a thread on the paper to be discussed here: Redox imbalance links COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Paul, Komaroff et al There is the suggestion in that paper that CoQ10 helps. The evidence does not support that idea, as discussed in the CoQ10...

"On Tuesday, December 14, from 5-6:30pm we are launching a new monthly zoom discussion group entitled: Looking at How ME/CFS Research Might Apply to our Care." Sounds like an interesting and potentially useful approach to discuss a paper alongside the Health Rising item on it. I'm not...

Getting around to reading the whole article, I thought the following was interesting. I don't think we yet have good evidence for HPA axis dysfunction including abnormally low levels of cortisol in ME/CFS. The authors say they didn't find low levels of cortisol levels in Long Covid patients in...

What a total mess. ANZMES has needlessly and substantially increased the concern of people with ME/CFS about being vaccinated, and now seems to be standing back saying 'wasn't us!'. Instead of pointing out quietly to Professor Tate that his opinions on vaccination have been unduly influenced...

I have sent off an email to the Hospital Trust, pointing out the clinic's apparent non-compliance with the new NICE guideline and expressing concern about the comments provided on behalf of the organisation.

Here are some excerpts from the Trust's comments on NICE ME/CFS Guideline draft (from page 422 in Part 1 of the comments). I first posted these on the Cochrane Exercise review thread, but I think potential patients of the NUT CFS/ME service should be aware of the views about ME/CFS that have...

The Newcastle-uponTyne's core values Patients come first. People and partnerships are important. Professionalism at all times. Pioneering services. Pride in what we do.

The NUT Hospital Trust operates a 'Chronic Fatigue Syndrome (CFS/ME) therapy psychology service' to assess and treat 'patients with CFS/ME'. Their services are described as "Our team provides individualised care for patients to: Sustain or gradually extend their physical, emotional and mental...

Huh? I was thinking that this was a nice, useful trial right up to the last sentence. So, peppermint oil did no better than the placebo in a blinded trial - in fact, if anything it did a bit worse on the main outcome. And there were no difference in the secondary measures. The abstract fails to...

EECP: A case study of 1, a potentially profitable treatment with multiple sessions required, the treatment is supposed to help with a whole lot of illnesses. She had had a pretty bad Covid-19 infection, having been hospitalised for a long time. So she may well have still been recovering. It's...

Of course it's supposition. Our local ME/CFS charity provided a grant to send a doctor to the Emerge conference - so, quite a big deal, international flights and accommodation costs. She was selected as she was the only doctor who applied and she came across as empathetic and concerned about...

Yes. Pointless from our point of view. I am sure there are some who see the Cochrane review as an opportunity to fight back against the NICE findings and make everything as it was. Which is why the people involved matter. Some information I have seen recently about Peter Gladwell (who is on...

Perhaps Cochrane felt pressured to include some kind of pro-GET clinician. Perhaps they actively sought one out. But the one they chose not only has a career tied to delivering GET in a clinical setting, she also has a long career in ME/CFS research, making her conflicts of interest...

Ah, ok, I just assumed based on your post (copied below) where you said that you have learned more about the people involved in the process as time has gone on. There hasn't been any public news about the process that I'm aware of for quite some time, not since we last talked about the people...

You underestimate the BPS proponents. :) A biological mechanism is no hindrance to a psychological explanation of cause, or for psychological treatments. They are busy carving out niches in MS, and many more diseases. I've been told CBT works by reducing inflammation.