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  1. MSEsperanza
    Post

    In search of distinct MS-related fatigue subtypes: results from a multi-cohort analysis in 1.403 MS patients, 2019, Pust et al

    Chalder Fatigue Questionnaire mentioned. Related forum threads: Discussion on fatigue measurement scales:...
    Post by: MSEsperanza, Feb 9, 2022 in forum: Other health news and research
  2. MSEsperanza
    Thread

    In search of distinct MS-related fatigue subtypes: results from a multi-cohort analysis in 1.403 MS patients, 2019, Pust et al

    Pust, G., Pöttgen, J., Randerath, J., Lau, S., Heesen, C., Gold, S. M., & Penner, I. K. (2019). In search of distinct MS-related fatigue subtypes:...
    Thread by: MSEsperanza, Feb 9, 2022, 2 replies, in forum: Other health news and research
  3. MSEsperanza
    Post

    Fatigue measurement scales

    Chalder Fatigue Questionnaire mentioned here: Pust, G., Pöttgen, J., Randerath, J., Lau, S., Heesen, C., Gold, S. M., & Penner, I. K. (2019). In...
    Post by: MSEsperanza, Feb 9, 2022 in forum: Subjective outcome measures (questionnaires)
  4. MSEsperanza
    Post

    The feasibility and acceptability of an early intervention in primary care to prevent CFS in adults: randomised controlled-O'Dowd, Crawley 2020

    Thread discussing the protocol and the data requested by JohnTheJack here.
    Post by: MSEsperanza, Feb 5, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. MSEsperanza
    Post

    O'Dowd-Crawley early intervention study

    This study and thread had completely escaped me -- landed here when searching the forum for the Work Productivity and Activity Impairment...
    Post by: MSEsperanza, Feb 5, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  6. MSEsperanza
    Post

    In progress: Technology Assisted Solutions for the Recognition of Objective Physiological Indicators of Post-Coronavirus-19 Fatigue (TROPIC), 2021 -

    Sponsors and Collaborators: University of Dublin, Trinity College Science Foundation Ireland (SFI) About the PI: Román Romero Ortuño...
    Post by: MSEsperanza, Feb 5, 2022 in forum: Long Covid research
  7. MSEsperanza
    Post

    In progress: Technology Assisted Solutions for the Recognition of Objective Physiological Indicators of Post-Coronavirus-19 Fatigue (TROPIC), 2021 -

    Which would be a pity, as the need for objective measures in this field is rarely acknowledged and this seems to be done by a highly respected PI,...
    Post by: MSEsperanza, Feb 5, 2022 in forum: Long Covid research
  8. MSEsperanza
    Post

    Fatigue measurement scales

    https://www.s4me.info/threads/hand-grip-strength-as-a-clinical-biomarker-for-me-cfs-2018-nacul-et-al.6612/ More forum threads on hand grip...
    Post by: MSEsperanza, Feb 5, 2022 in forum: Subjective outcome measures (questionnaires)
  9. MSEsperanza
    Post

    In progress: ...Improvement of Fatigue, Sleep Problems, Anxiety / Depression, Neurovegetatives Alterations and Quality of Life After.., 2020 -

    The investigators seem to have some non-evidenced ideas about what ME is but also about the measurements they want to use. FIS-40 = Fatigue...
    Post by: MSEsperanza, Feb 5, 2022 in forum: ME/CFS research
  10. MSEsperanza
    Post

    In progress: Technology Assisted Solutions for the Recognition of Objective Physiological Indicators of Post-Coronavirus-19 Fatigue (TROPIC), 2021 -

    Primary Outcome Measures : Active Stand with Near Infrared Spectroscopy and Electromyography [ Time Frame: Day 0 ] 10 minute supine rest,...
    Post by: MSEsperanza, Feb 5, 2022 in forum: Long Covid research
  11. MSEsperanza
    Post

    Open Sweden: The role of low-grade inflammation [...] in ME/CFS, Andreasson et al - recruiting

    Previous research by Andreasson / Jonsjö:...
    Post by: MSEsperanza, Feb 5, 2022 in forum: Recruitment into current ME/CFS research studies
  12. MSEsperanza
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Guardian: Long Covid: nearly 2m days lost in NHS staff absences in England/ Ian Sample /24.01.2022 (ME not mentioned) MPs urge support for...
    Post by: MSEsperanza, Jan 24, 2022 in forum: Long Covid news
  13. MSEsperanza
    Post

    DecodeME - UK ME/CFS DNA study underway

    I think the current 'direct e-mail template' on the website is good for general reach-out. Just saw that the content of 'simple' and 'personal'...
    Post by: MSEsperanza, Jan 23, 2022 in forum: ME/CFS research news
  14. MSEsperanza
    Post

    DecodeME - UK ME/CFS DNA study underway

    Thanks, Andy. And apologies: I can't understand how I could miss that the minimum age is the first thing mentioned below the headline on the...
    Post by: MSEsperanza, Jan 23, 2022 in forum: ME/CFS research news
  15. MSEsperanza
    Post

    DecodeME - UK ME/CFS DNA study underway

    Apologies -- not able to catch up with ME news and DecodeME updates at the moment. Thought about putting an e-mail together to family and friends...
    Post by: MSEsperanza, Jan 22, 2022 in forum: ME/CFS research news
  16. MSEsperanza
    Post

    Functional Neurological Disorders - discussion thread

    Yes, it seems that the confusion hasn't been due to the medical understanding of MS but due to misdiagnosis for other reasons? See ME/CFS...
    Post by: MSEsperanza, Jan 20, 2022 in forum: Psychosomatic theories and treatments discussions
  17. MSEsperanza
    Post

    Implanted spinal neuromodulation interventions for chronic pain in adults, 2021, O'Connell (Cochrane)

    Posted this mainly for the discussion on research methodology and Cochrane.
    Post by: MSEsperanza, Jan 12, 2022 in forum: Other health news and research
  18. MSEsperanza
    Post

    The unbearable lightness of somatisation: A systematic review of the concept of somatisation in empirical studies of pain (2009) by Crombez et al.

    Interesting that Christopher Eccleston (Cochrane) is a co-author -- on both papers. Edited to add: Thread on Eccleston's book 'Embodied: The...
    Post by: MSEsperanza, Jan 12, 2022 in forum: Other psychosomatic news and research
  19. MSEsperanza
    Thread

    Implanted spinal neuromodulation interventions for chronic pain in adults, 2021, O'Connell (Cochrane)

    Implanted spinal neuromodulation interventions for chronic pain in adults - O'Connell, NE - 2021 | Cochrane Library...
    Thread by: MSEsperanza, Jan 12, 2022, 1 replies, in forum: Other health news and research
  20. MSEsperanza
    Post

    Retraction Watch article: New feature aims to draw journals into post-publication comments on PubPeer

    I wonder if it's possible to also post links to forum discussions, including critique on biomedical research papers, with some quotes?
    Post by: MSEsperanza, Jan 6, 2022 in forum: Other health news and research
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