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From the document linked in the last tweet above. "Published September 2019 | Updated March 2021" So not a new change by the look of it.

TG on Twitter. "Writing a paper. Can anyone point me to studies published early in the pandemic which dismissed long covid as "functional" or "all in the mind"? (Just to be clear: this isn't a view I share but I want to analyse the reasoning of those who said it). THANKS all. Will post summary."

Question asked in Parliament in 2021. Question. "To ask Her Majesty's Government why the Department for Work and Pensions classifies ME/CFS as a musculoskeletal disease for the purposes of statistics and for the guidance and training of their health professionals, rather than as a neurological...

Failure to support long Covid sufferers could add billions to benefits bill, Rishi Sunak warned Possible sign-up wall, https://www.independent.co.uk/news/uk/politics/sunak-long-covid-benefits-work-b2251905.html

Full title: A cohort study of Post COVID-19 Condition across the Beta, Delta and Omicron waves in South Africa: 6-month follow up of hospitalised and non-hospitalised participants Abstract Objective : The study aimed to describe prevalence of and risk factors for Post COVID-19 Condition (PCC)...

News in Brief posts from w/c 26th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid028Cocm2qT2ruudmU7dJTo55EFQE8ejRj7zLadKkuCBnj43jUr9DXnuKFoiNp4PvnAl published papers thread Facebook...

Background and Aims The Intestinal mucosa undergoes a continual process of proliferation, differentiation, and apoptosis. An imbalance in this highly regimented process within the intestinal crypts is associated with several intestinal pathologies. Although metabolic changes are known to play a...

Full title: A scoping review of regulatory T cell dynamics in convalescent COVID-19 patients – indications for their potential involvement in the development of Long COVID? Background: Recovery from coronavirus disease 2019 (COVID-19) can be impaired by the persistence of symptoms or new-onset...

"As 2022 is closing, it is time for our annual tradition where we look back at the most interesting scientific studies on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) of the past year. The yield for 2022 is far from impressive but there were a couple of interesting ME/CFS studies...

The purpose of this study was to look at the effects of low and high intensity resistance training (RT) on the mood states of fibromyalgia patients (FM). A total of 69 women participated in the study, with 31 healthy women serving as control group (HC), and 28 women diagnosed with FM being...

Full title: Primary somatosensory cortex and periaqueductal gray functional connectivity as a marker of the dysfunction of the descending pain modulatory system in fibromyalgia Background: Resting-state functional connectivity (rs-FC) may aid in understanding the link between pain-modulating...

Alternatively, patients more severely affected in various illnesses are less likely to temporarily change their answers to questionnaires following CBT. Therefore this study provides transdiagnostic proof of the ineffectiveness of CBT.

While obviously it is ideal to have fully informed patients involved, from my experience common sense can get you a long way. And, on balance, I would far prefer to have a patient involved than not.

Also available from https://solvecfs.org/letter-for-medical-providers-on-caring-for-people-with-severe-and-very-severe-me-cfs/

My guess, someone at AfME didn't renew the domain name registration when they should have done and it was snapped up by this third party. If someone is motivated enough to host BPS supporting material then a simple request from AfME is unlikely to produce results. And it is unlikely that the...

Lateest video released that is currently being promoted is Impact of Long COVID on Day-to-Day Life https://longcovid.physio/long-covid-video-series/impact-on-day-to-day-life

"Long COVID Physio has partnered with FisioCamera to deliver a series of educational videos about Long COVID. Click on the images below to watch a short video or read the written transcript." https://longcovid.physio/long-covid-video-series

That website is registered to "Mrs J Gilbert t/a Gilbert [Tag = UKPHA] URL: https://ukpha.org.uk" That UKPHA website is an old one that doesn't look to have been updated for around 12 years. "Welcome to the UK Public Health Association website UKPHA is a unifying and powerful voice for...

Trial By Error: Usual Suspects Say NICE Made Eight Errors; Nonsense, Says Committee Member Adam Low "The usual suspects—several dozen of them—are apparently about to publish a cri de coeur outlining their objections to the ME/CFS guidelines issued in October, 2021, by the UK’s National...

98% is from the published paper, 90% is from the unpublished paper.