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  1. Arnie Pye

    Psychological flexibility and global health in young adults with and without a self-reported functional somatic syndrome ... 2023, Thomas et al.

    Psychological flexibility and global health in young adults with and without a self-reported functional somatic syndrome: a preliminary investigation Has any patient who knows what it really means ever said to a doctor "I have a self-reported functional somatic syndrome"? It would be like a...
  2. Arnie Pye

    Protocol Psychological Adaptiveness to Critical Events (PACE), 2023, University of Oslo

    It seems silly to re-use an acronym when the original has been torn to shreds in so many places.
  3. Arnie Pye

    Autoantibodies to Selenoprotein P in Patients with CFS suggest Selenium Transport Impairment and .. Resistance to Thyroid Hormone, 2023, Qian Sun et a

    Now published, see post #6. Preprint, not peer reviewed : https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4332223 Autoantibodies to Selenoprotein P in Patients with Chronic Fatigue Syndrome suggest Selenium Transport Impairment and Acquired Resistance to Thyroid Hormone Qian Sun1,2,†...
  4. Arnie Pye

    Long Covid in the media and social media 2023

    The first time I tried to access it I was asked to subscribe. The second time I tried to access it it partially showed up. I did have to click on "Read full article".
  5. Arnie Pye

    Expert warns 'sleep hygiene' solutions including sleepy tea makes things worse for poor sleepers

    I have a non-24 hour sleep cycle. I hate going to bed when I'm not tired. I got sent to bed by my parents when I wasn't tired for about 10 years, from the age of about 8 - 18. Imagine being 16 / 17 / 18 and still being sent to bed at 9pm! I wasn't allowed to have a light on, and nor was I...
  6. Arnie Pye

    Long Covid in the media and social media 2023

    I have never seen the flags or how they are recorded. I'm just saying that it takes no more than a second from looking me up on a computer, to then being scowled at. So there must be a warning that pops up as soon as my record is accessed in a surgery or hospital and I've had the same experience...
  7. Arnie Pye

    Long Covid in the media and social media 2023

    I think most people just guess based on the level of rudeness/dismissal/rolling eyes they get. I can't remember the number of times I've given my identifying details to a receptionist or nurse in a GP surgery or a hospital, they've looked me up on their computer, and then they look up at me and...
  8. Arnie Pye

    Long Covid in the media and social media 2023

    I could come up with a few suggestions as to why this is. 1) In England (I'm not familiar with events in other parts of the UK) I think an alarming number of surgeries have sprung up as for-profit private businesses...
  9. Arnie Pye

    Long Covid in the media and social media 2023

    I would have thought that antidepressants would have increased her memory problems, not helped to solve them. Nobody thought that the girl's problems could have been brain damage from the accident she had? Do doctors normally test electrical activity in the brain of people who've had car...
  10. Arnie Pye

    Exploring maladaptive cognitions and behaviors as perpetuating factors in patients with persistent somatic symptoms: a longitudinal study 2023 Barends

    Every time I see that word "cognitions" I automatically translate it to "thoughts" as I read it. Despite looking up the definition I'm still none the wiser as to whether "thoughts" is accurate, but I don't think it is. According to the American Heritage Dictionary of the English Language ...
  11. Arnie Pye

    The bidirectional effect of stress and functionality in MS and the interaction role of anxiety, coping and social support 2023 Moss-Morris et al

    Let me guess... If the authors think they can prove a connection between stress and MS it will only take a few weeks after that before they declare in the media that MS is caused by stress and can be fixed with CBT and exercise.
  12. Arnie Pye

    Magnesium

    Have you tried magnesium oil? It isn't a true oil - it has no hydrocarbons in it. It is rubbed on the skin. It can be bought ready made or, with the right ingredients, people can make it themselves. I have no idea how well the magnesium is absorbed from mag oil, but it does get mentioned quite...
  13. Arnie Pye

    Magnesium

    I don't have any thoughts on those except that they seem to be very expensive. A couple of years ago I bought a 500g bag of magnesium citrate powder (food grade) for under £10 from Ebay or Amazon. I take it at a dose of quarter of a level teaspoon in orange juice. I keep it in a plastic box...
  14. Arnie Pye

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    ONS figures have shown an increase of 22% in excess deaths in the UK (week 16 of this year, plus some other weeks too). The man who posted it is not a medical doctor, he is a PhD (I think).
  15. Arnie Pye

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    I got it to open a relevant reddit page when I right-clicked on the link and "opened link in new tab." https://www.reddit.com/r/Residency/comments/13hotb3/which_medical_diagnoses_you_are_skeptical_of_in/
  16. Arnie Pye

    Ethnic minority patients yearn for warmth from health care professionals, research finds

    I assume that any doctor who is unexpectedly nice to me is just good at acting, if I have already been scowled at by receptionists and/or secretaries and/or nurses before I met the doctor himself or herself.
  17. Arnie Pye

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    I usually reject the idea of going to A&E if the problem I have is invisible, and I just keep my fingers crossed that it won't turn out that I have cancer, or am suffering a heart attack, or a stroke.
  18. Arnie Pye

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Has Alan Carson ever been known to complain about groups discussing FND, ME, or Long Covid which were 100% psychiatric/psychological/mental health orientated? Edit : Just wanted to say that this post was written with tongue firmly in cheek.
  19. Arnie Pye

    Protocol Feasibility randomised controlled trial of online group Acceptance and Commitment Therapy for Functional Cognitive Disorder (ACT4FCD) 2023 Poole et al

    So, is that implying that patients with dementia in one of its many forms [Edit: for example] actually have "Functional Cognitive Disorder" and could have better memories if only they tried harder? And "Acceptance and Commitment Therapy"? Always sounds to me like the therapist must be telling...
  20. Arnie Pye

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Yes, but I think from the BPS point of view, patients are lying about their fatigue health because they are lazy, drug-seeking, attention-seeking hypochondriacs. A lot of doctors have similar points of view about women talking about their pelvic pain and their periods. Edit : Changed the word...
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