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"It is thought to be caused by excessive pre-conscious attention to the body; abnormal predictive coding; abnormal agency/ awareness of the self; inaccurate interoception and abnormal sensory processing." Only by one complete idiot who hasn't noticed that his theory is backwards!

I don't see that as being problem. There is already very substantial patient involvement. Asking for wider comment is part of the consultation protocol but nobody is going to go away with the impression of lack of interest.

Yes, they are the 'micro clots', not levels of this or that that might or might not be relevant to micro clots (that look to have formed after sampling).

Is Niko Pretorius something to do with Etheresia Pretorius? If so, his opinion would not seem very independent. Edit: they are both lined to Stellenbosch University

But maybe things have changed now that we live in the Twitter age, or maybe just the meme age. There is an official meme now out there that it is ME/CFS and not BPS. However much the BPS people want to manoeuvre, they are not the official meme any more. As to when that happened I am not sure...

I cannot work out quite if this is the Research Working Group I sit on. I guess it may be. There are several charities involved. The Groups I am involved with are entirely 'on message' as far as the S4ME position goes. The differences of opinion are entirely about the best way to push forward...

It is an interesting question but if my experience with the working groups run by the Department of Health is anything to go by things have changed in a way that cannot really be reversed. There are two options for an e-learning module. One starts out like the NICE Guideline. The other starts...

I have only had a quick skim of the main document. It seems to be encouraging. There seems to be a clear message that if you are someone who thinks there were 'anomalies' in the NICE Guideline procedure, it might do to think again, ducky.

No, some other ninnies did.

It was. Perhaps it normally doesn't take them this long to consult their lawyers.

I was beginning to think the ranks had closed completely but not quite. I can say that I think it is an excellent letter because it was composed by others. Nevertheless, it also expressed my own views better than I could.

Yes. Essentially all treatments for rheumatoid arthritis were serendipitous until the 1990s when we began to understand mechanisms. You need either a mechanism rationale or some pragmatic evidence that suggests an effect to justify most trials.

I think it is a pity that NICE produced this comment: “In developing our guideline, as well as bringing together the best available scientific evidence, we also listened to the real, lived experience and testimony of people with ME/CFS to produce a balanced guideline which has their wellbeing...

Isn't this just the home webpage of an author claiming this as a publication from that institution? Just as UCL might stick up one of mine (but doesn't quite like this.)

It looks as if he has simply resigned as Clinical Lead, which is just a nominal administrative chore. If he is still Honorary Consultant he is likely to be working just as before. That is the usual clinical title for an academic doctor.

The approach may well be based on sensible thinking but I think we have to accept that the study tells us nothing useful because the methodology isn't up to it.

I cannot find much in my email files. The initial discussion was in Phoenix Rising days. I forget how long it took for the review by Guyana and the subsequent fudge by KSW. David T @dave30th would likely have more information about the timeline - including correspondence with Tovey, which did...

All I can see at present is my reviewer's report for the IPD on 11th July 2017. I think the discussion with Tovey followed on from that and ended up with Soares -Weiser some months later? This must all be documented in a conversation between us somewhere?

If only... Abstract Abstract (sic) Hey guys. I was writing this PhD thing about intervention-specific heterogeneity and all that stuff about chronic fatigue and what do you know!! I found this amazing patient website called S4ME and I read a few bits. Then I read quite a lot of bits and hey -...

The devil is in the detail @Kitty. Your nan was approximating. In 1968 46.5% of the world were absolute gibbering nincompoops. I suspect you are also approximating. Sadly, the figure is now 53.2%. That is why the US Congress is having an investigation into the secret policy of the US...