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    Norway:Standardizing collaborative care pathways for adolescents and adults with idiopathic chronic fatigue and CFS/ME across different public sectors

    This, so much this . It's wonderful for muddying waters and perpetuating harm.
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    Bipolar disorder and ME/CFS

    I don't know but am often struck by symptom overlap with Parkinson's / Alzheimer's ( which both can feature hallucinations and paranoia) , which is reinforced by some people responding to dopamine modulating medication, so there may be a mechanism / shared symptom pathway. This may be more...
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    Trial Report Amitriptyline at Low-Dose and Titrated for Irritable Bowel Syndrome...a randomised, double-blind, placebo-controlled, phase 3 trial, 2023, Ford

    Mmm. Not much sleep tonight , so thoughts are a bit random . Did they look at gut bacteria/ microbial balance prior ? Seratonin is made in gut and anti depressants can affect gut bacteria. Estrogen degradation can be affected by gut bacteria , so if female, ( who were in majority here ) I...
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    Review The Impact of Depression, Anxiety and Personality Disorders on the Outcome of Patients with Functional Limb Weakness... 2023 Calma, Perez, Stone et al

    Religion / cult ? Has all the attributes
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    Crowdfunded awareness campaigns including billboards

    I think billboards are probably effective in USA as largev road network and public transport out with metropolitan areas is poor. So large roadside messaging may be effective. Billboard type signage can also be memorable on long monotonous stretches of road , but it's not common here .(UK) If...
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    Opinion 'Long covid' and how medical information is causing illness: A philosophical issue affecting public health, 2023, Garner, Vogt

    Yes undoubtedly the guideline has changed , and that is long overdue and hopeful. But on the ground , where it's medical staff delivering service , change is noticeable by its absence . This may simply reflect the mammoth task of turning a ship around , however, that's where this type of...
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    Opinion 'Long covid' and how medical information is causing illness: A philosophical issue affecting public health, 2023, Garner, Vogt

    Sadly progress with NICE remains on paper for many . Change has yet to happen - prevailing opinions are still an issue.
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    Persistent post-COVID headache is associated with suppression of scale-free functional brain dynamics in non-hospitalized individuals, 2023, Churchill

    Given some pwME have permanent headaches which simply ramp up and down a comparison group would be interesting .
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    Population immunity predicts evolutionary trajectories of SARS-CoV-2

    Twitter feed link Paper https://doi.org/10.1016/j.cell.2023.09.022 Simplified summary https://www.news-medical.net/news/20231024/Community-immunity-Steering-the-evolutionary-course-of-SARS-CoV-2.aspx ETA reposted link
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    Functional Neurological Disorder (FND) - articles, social media and discussion

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    A UK father on Twitter looking for experiences of harms from medical care for POTS, EDS and MCAS

    St Mary's
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    A UK father on Twitter looking for experiences of harms from medical care for POTS, EDS and MCAS

    Some may wish to respond re this thread - UK Parent trying to get Panorama interested One hospital in particular seems to pop up
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    Is the road to burnout paved with perfectionism? The prevalence of obsessive-compulsive personality disorder in... female patients.., 2023, Reinhardt

    Burnout is a particular catch all / has particular fascination in Sweden. @Kalliope may explain better. at least there were sensible exclusions.
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    ME conference in Sweden 11-12th Oct 2023, The Hidden Disease

    Thank you @Kalliope
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    [Recruiting] COVID-19 Human Challenge Study: COVHIC002 (Imperial College)

    There s a quote that was popular on social media relative to COVID 19 earlier this year to the effect of ... After 5 infections the mice were all dead ... At this point some will not know how many times they have had COVID . This is a dangerous game of Russian roulette
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    Well-known, famous people with Covid-19 and Long Covid

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    Hypothesis Ineffective control of Epstein-Barr-virus-induced autoimmunity increases the risk for multiple sclerosis, 2023, Vietzen et al.

    I think the long term mono study could throw up potentially interesting correlations if it could be funded for intermittent followups over a long time.
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    News from Cochrane

    Where's Elizabeth Blik when you need her
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    Has anyone else here struggled with a persistent verruca?

    Old wives tales are topical applications. Don't know if you've tried any of these. Banana skin ( many swear by this it has a compound which is said to break down verucas). Vinegar Tea tree oil ( diluted) - contains Terpinen -4, an anti microbial which is said to be effective - used for one...
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    Serotonin reduction in post-acute sequelae of viral infection, 2023, Wong, Cherry et al

    Did they consider estrogen , particularly in females Serotonin and estrogen ' s relationship modulates many things . https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1327664/
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