My experience with one adult and two young people going through the assessment and monitoring stages for ME/CFS is that medical records are...
If I had invented the green toes drug and really wanted to know if it worked, I'd arrange to have a control cohort. I'd have people in both...
I like this idea a lot. I think it is relevant to not just the UK, but wherever there are ME/CFS/LC services. In my career, I had some...
The 2009 Light study found I don't know how the 2009 Light study determined gene expression for TLR-4 - by expression on PBMCs or by soluble...
Utterly horrifying. Kasia Kozlowska 1,2,3,* , Olivia Schollar-Root 1, Blanche Savage 1,4, Clare Hawkes 1, Catherine Chudleigh 1,4, Jyoti...
I've watched the whole thing and I agree. It is very good. If everyone saw this video and took what is said on board, we'd be in a whole lot...
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See my post above. There is a normal CPET to generate the VO2 peak, then a three minute rest sitting on the bike, and then another bout of...
I think they care, but they seem fundamentally incapable of accepting that nothing they do is actually going to fix the patient.
This seems like a well-conducted and careful study. But it does seem as though they may have looked where it was easy to look, rather than where...
It sounds as though many of the participants did have fatigue (30/40). Table 3 is an interesting table of symptoms in the PCS cohort. Only one...
They don't tell us how the PCS people were diagnosed - but they were diagnosed by a respiratory team. I wonder if that skewed the selection to...
Many thanks to two ME/CFS research foundations who have added their names to the list of organisations supporting the open letter: ME/CFS...
It's really important that anyone who participates in a clinical trial with significant risk of harm asks about compensation in case of injury and...
If a label of fibromyalgia is pejorative, and it often is, that illustrates a whole other problem. There's the same issue with labelling some...
Karolinska , Sweden This looks like an interesting study; relatively small numbers. This doesn't surprise me, as I think POTS symptoms are...
I guess if you want to recruit people for ME/CFS studies, or you want to participate in them, then its important to have a good way of diagnosing...
The abstract doesn't read well but the paper seems to be generally sympathetic and relatively informed, at least as far as I have got. I mean they...
If I was a cynical person, I might think that this is an attempt to add a subjective measure to a condition that is defined objectively. So a BPS...
PETITION UPDATE Cochrane refuses to follow its own complaints procedure NOV 19, 2023 — As we have reported, the Science for ME committee...
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