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A lot of the good ones—people who went into it to help—left years ago when the culture changed. A relative trained as a disability support worker, who could help people struggling to succeed in job interviews because of employers' prejudices about their disability. She loved it because she was...

I'd love to see it too, but it's not easy to evidence to a high standard. What's happened to us is immoral, but it's unlikely it was actually illegal—it's very different to the Horizon case, even though it's caused no less misery and harm. I'm not so sure, unfortunately! The Post Office is...

Yes, it struck me that sections about symptoms ought to clarify that it means only those that started after ME onset, or that aren't clearly linked to another condition. I answered it that way, but it wouldn't occur to everyone. Same with Andy's point about this: I assumed that if you gave...

I answered all the questions except the one about severity. I had to skip it because it bore too little resemblance to my illness. I'd describe myself as moderately affected, but there's no way I could manage some of the things it suggested moderately ill people can do. The severe categories...

I wonder what the main reasons for that are? I suppose it might partly be because by the time a study has been completed or published, things have just moved on. But I also wonder about funding, where the results are interesting but not quite convincing enough to make a strong case for a larger...

I wonder if it's even worse than that, with some of them not actually invested in their theories at all. They're invested in their ability to hoover up grant funding by telling policymakers what they want to hear.

Yes, I think so. That section stuck with me particularly; the notion that as soon as clinicians start suffering from the illness themselves, they become unreliable witnesses. It's a particularly vicious part of the gaslighting process.

I took the tweet to mean they have plans for mild/moderate patients already, and hope to involve severe patients at some stage (which presumably is substantially more difficult due to the need for a biopsy). Might be wrong, though!

Yes, in some cases. Generally, though, it seems rare for much of the content of a course to follow through into a career, even if you're working in the same subject area. You're going from the theoretical world into the real one and life is very, very different there. I couldn't believe some of...

Sorry to hear you're having to go through this again. Whatever those loops are, a small proportion of pwME find that a further immune stimulus—a virus, say, or a Covid jab—ties them up in such knots that they stop working properly for a few days. It's great while it lasts.

I had my own thoughts about this, so I asked ChatGPT. _____________________________________ Q: Why do people study psychology? A: People study psychology for various reasons, as the field offers a wide range of fascinating topics and applications. Here are some common reasons why individuals...

Part of the problem is probably that we don't have a lot of firm ground on which to build a case for major investment. Small studies exploring theoretical models get grants, but funders often want evidence that the results are compelling enough to justify in-depth work with larger cohorts...

Yes! I'd love there to be a TripAdvisor for BPS therapies.

The projects I mentioned were offered as healthcare, it was nothing to do with DWP. There was a menu of options to pick from, and no one was under any pressure to take part. Also, it was offered to people who were recovering, and I think that was really important. I know a couple of folk who...

Columnist and political commentator at the Guardian newspaper. She has an edge like a scalpel, and is hilarious with it.

I saw that, but I was too depressed to post it! I was involved in a couple of projects where social prescribing helped some people who were struggling with their mental health, but it was important they wanted to do it and that it came at the right time for them. If people are pressured into...

:rofl::rofl: David could give Marina Hyde a run for her money.

There's the pilot study in Sheffield: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Dr Caroline Dalton Forum link...

And this has only just occurred to them? "Anybody can stick a label on a bottle saying Chanel No. 5. Have a sniff before you buy it."

He still seems to be doing his best to follow its trajectory. He's going to need a submersible to dive deep enough soon.