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That would be the social part of psycho-social.

I first learned the term 4 years into it, and it was a real shock of recognition, light bulb turning on moment.

They are told that they are suffering from stress; that they are depressed or anxious. The implication is that their condition is psychosomatic; meaning that their emotions are manifesting as physical symptoms. This is a very invalidating experience that adds insult to injury. It is a lot worse...

This. At my worst I was never out of touch with reality, by any valid measure. It was often very difficult to process what was going on, and I made (and still make) a lot of errors in processing, but I always had my eye on the reality ball. The difference to me is that I knew full well I was...

Once upon a time neurology was absolutely sure that the reports from MS patients about monocular diplopia (double images in one eye) were impossible (inconsistent with the laws of physics, to use Stone's phrase in this paper), and indeed evidence of some form of psychopathology. Until it wasn't...

Meh. He is still clinging just as tightly onto the whole FND project. I don't see much practical distinction between incongruency and inconsistency. The comments he makes on the problems with incongruency could be applied to inconsistency too.

Once again, the only explanation that makes sense to me about findings like this is that they are downstream secondary consequences of whatever is the primary pathology. Given that ME is a specific discrete entity and underlying pathological process, then it explains why effectively all...

That is the question that needs answering.

Sadly, I have to agree with @JemPD. The risk is too high at this point. We don't have a solid evidentiary case yet about the causes and pathophysiology. The people responsible for this brutal catastrophe are still very much in power and highly influential, and have made it abundantly clear...

It would have been obvious decades ago. Even if it was a novel form of MS. Desperation, no matter how justified and compelling, is not a reason for lowering methodological quality nor undue speculation. That just plays straight into the hands of the psychosomatic club, because it legitimises...

The health care is likely to break down unless we are able to increase the level of functioning for the growing number of patients with complex, chronic illnesses. Client Satisfaction Questionnaire (CSQ-8)) (1 week), Work and Social Adjustment Scale (WSAS), Brief Illness Perception...

Sounds all too familiar.

The problem is not with EBM itself, it is with how it has been perverted.

+1

For successful management patients need to accept and accommodate their disability, focusing on what they can still do instead of lamenting what they cannot do. [CBT & GET] should be considered for patients who are willing to try them Yes, the problem is entirely with the attitude and beliefs...

Actually, such considerations involving emotional and spiritual elements in healing have been around for many years. But they have been treated as less credible and belonging to so-called alternative medicine. For very good reasons.

Yeah, I am not convinced either. Of course it is possible, and we should keep an open mind about it, but nothing more at this stage.

It will need more than that. There are some who have behaved so atrociously and disreputably, and are clearly hell bent on continuing to do so, that they have forfeited their credibility and authority and must be removed from the entire game. It is more than just for moral accountability alone...

Second, make sure you have a very strict and agreed-upon definition of what long COVID constitutes: I am far more concerned about overall methodological quality. I don't think we are at the point where definitions can be improved much more, at this time. The way to better definitions is more...

...inability to form adequate mucosal layers throughout the body... Might be something to this, given frequent reports of dry eyes and mouth, etc.