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  1. rvallee

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    There was a NHS-organized Long Covid conference yesterday, and one of the presentations from a clinic lists Curable as one of the things they prescribe, or use, or whatever. The colors they chose are really unhelpful, but it even looks like it's the most common from this service.
  2. rvallee

    Review Long Covid in Aotearoa NZ: Risk assessment and preventive action urgently needed, 2024, Kvalsvig et al

    To be fair, if we did spend the money on that and other things, billionaires may have to do away with having to live on only 4 yachts, instead of 6, millionaires may have to see their wine cave almost half empty, and that's just clearly not a future worth living. Think of the crew of the other 2...
  3. rvallee

    In major dysmood disorder, physiosomatic, chronic fatigue and fibromyalgia symptoms are driven by immune activation and... 2024 Maes et al

    One of the growing paradigms in AI is Mixture of Experts (MoE), a technique where various independent models are asked the same question and a general language model takes the various inputs and chooses what is most relevant in a single response. I'm not sure this technique would give anything...
  4. rvallee

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    There was a NHS-organized Long Covid conference (clearly to the surprise of everyone, it doesn't seem to have been announced beforehand) and McGregor presented the results of REGAIN as being positive, he even included the truncated axis that is a thing only done shadily, so I doubt he or BMJ...
  5. rvallee

    Open Sweden: The role of low-grade inflammation [...] in ME/CFS, Andreasson et al - recruiting

    I am not aware of any such thing, and my impression is that the very same things are being pushed. Although to be fair, it's probably accurate to say that it's 2 decades behind, it's also 2 decades ahead, since neither field have changed from the old failed psychological rehabilitation paradigm...
  6. rvallee

    The modified COVID-19 Yorkshire Rehabilitation Scale (C19-YRSm) patient-reported outcome measure for Long Covid or Post-COVID-19 syndrome, 2022, Sivan

    They really should just use a scale that goes to 11. It wouldn't solve any of the issues, but it would do it going all the way to 11.
  7. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    The NHS is hosting a Long Covid conference, and it's the usual failed claptrap pseudoscience and 'mind-body' woo, with a few presentations actually based in reality. Seems like one of those services is diagnosing half with FND, vs 5% with ME. Twitter thread with a few more details: Edit...
  8. rvallee

    Individual outcomes after tailored versus generic self-management strategies for persistent fatigue in youth with a fatigue... 2024 Vroegindeweij+

    So where they use 'tailored' and 'generic' they actually mean neither word. This is obviously very generic. It's very unlikely that there would be significant differences between patients. Table 2 has some of those, and it's all completely generic and similar across participants. This is...
  9. rvallee

    Exercise therapy for treatment of acute non-specific low back pain: a Cochrane systematic review and meta-analysis of [RCT]s, 2024, de Zoete

    Very similar underlying data, problems and biases. Oddly different conclusion. This is a Cochrane review.
  10. rvallee

    Exercise therapy for treatment of acute non-specific low back pain: a Cochrane systematic review and meta-analysis of [RCT]s, 2024, de Zoete

    Exercise therapy for treatment of acute non-specific low back pain: a Cochrane systematic review and meta-analysis of randomised controlled trials https://pubmed.ncbi.nlm.nih.gov/38513994/ Objective: To assess the effectiveness of exercise for acute non-specific low back pain (LBP) versus our...
  11. rvallee

    Cochrane Canada guidelines for post-COVID19 condition / Long Covid

    A request for comments has been put out for the latest recommendations, with one week to answer. I still don't know what the point of this project is, it seems like a complete waste of effort that will publish a series of reports that no one in charge will read or care about. The survey...
  12. rvallee

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    This really says that the entire premise of such tests is flawed beyond repair, and that they simply should never be used for anything or taken seriously beyond how Meyers-Briggs is. When you read how the creators of this test intend it to be used and the caution they place on its use, and how...
  13. rvallee

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    A "new" step. That is the old step. Their step, and only that. Always. They can't even define or name what that step is, because it's always the same step, back well over a century. Talking against dualism and about body and soul. Or body and mind, if it's just lost in translation. And they...
  14. rvallee

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Oh, by free speech they mean that they speak and you're free to listen. Easy confusion. They've always worked to censor and silence us, and have been very effective at it. Then several of them will keep on harping about free speech and censorship, as they have for years while they do everything...
  15. rvallee

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I was not aware that Dianetics is basically psychosomatics with a different hat. It actually explains a lot. Although the irony of psychiatry dismissing Dianetics as pseudoscientific, when it's largely the same as their own stuff. Wow. Impressive.
  16. rvallee

    Article re Switch that stops immune system attacking healthy cells

    It especially makes no sense that all of this evolved before language and complex communication was even possible. In addition to us being the only species that communicates. Illness that kills tends to leave no doubt that it's dangerous, it's only because of modern technology that this can...
  17. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Researchers develop online tool to encourage people to seek support for long Covid https://www.pulsetoday.co.uk/news/clinical-areas/respiratory/researchers-develop-online-tool-to-encourage-people-to-seek-support-for-long-covid/ (Pulse is a magazine for GPs, there are sometimes comments but they...
  18. rvallee

    Higher level of physical activity reduces mental and neurological symptoms during and 2 years after COVID-19 infection in young women, 2024, Takács et

    Illness largely defined by inability to exert observed less in people able to exert themselves more. "Higher levels of spending reduces financial symptoms during and 2 years after significant loss of income" Notice how the title is explicitly framed as causative: you exert more, you will be...
  19. rvallee

    American Psychosomatic Society no longer "Psychosomatic?"

    I just noticed how they don't understand what we mean by fatigue, as they put the ZZZZZs signifying somnolence on both mental and physical fatigue icons. I had such a weird time at a sleep clinic trying to explain how when I say fatigue I don't mean somnolence. It's really not possible to work...
  20. rvallee

    Clinicians urged to move away from ‘doctor knows best’ view

    Humility. What a concept. Had to ask ChatGPT to be sure: Hopefully we can do this with less pomp, but I like the general idea. Heh, general idea. What's weird is that MDs are generally trained to be humble. To know the limits of their knowledge. To admit their possible failings. To be aware...
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