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  1. NelliePledge

    Almost half of long-term antidepressant users ‘could quit with GP support’

    If people have situational depression and there’s no control over the situation it may be necessary to be on anti depressants for longer term than 2 years. In my case I had minor depression for a decade and once my parent with very severe dementia eventually died I actually proposed to my GP...
  2. NelliePledge

    Well-known, famous people with Covid-19 and Long Covid

    CEO malingering :whistle:
  3. NelliePledge

    UK: Physios for ME

    @PhysiosforME i wonder if education reach could involve something like the MEA do with the purple book sending it out to GPs. If a way of getting your book out to trainee or newly qualified physios. Perhaps funded by a grant and or crowd funding
  4. NelliePledge

    Orthostatic Intolerance in PwME (POTS?/NMH?) - discussion thread

    I’ve only ever passed out once due to violent coughing. That was during the 10 years when I had undiagnosed ME. But I don’t think is related to ME. I have hypertension which was first identified around the time of the gradual onset of my ME. But everyone in my immediate family had/has...
  5. NelliePledge

    Open Medicine Foundation (OMF)

    Thread for the paper https://www.s4me.info/threads/systems-modeling-reveals-shared-metabolic-dysregulation-and-novel-therapeutic-treatments-in-me-cfs-and-long-covid-2024-gong-hua-et-al.39002/
  6. NelliePledge

    Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al

    That looks a good project @SNT Gatchaman i don’t have skills to help but good luck :thumbup:
  7. NelliePledge

    Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al

    You’d probably need to do it 2 or 3 times a day to capture the variability I am one of the people who start off at my worst level of functioning and am at my best later on. Assuming I’m only pottering around the house that is. A big activity especially outside home will immediately affect my...
  8. NelliePledge

    Long Covid Moonshot Initiative

    I hope if she gets contacted by Garner she is not taken in by his BS
  9. NelliePledge

    Trial Report Online acceptance and commitment therapy (iACT) for adults with persistent physical symptoms – 3-month follow-up study of a... 2024 Lappalainen et al

    That’s a shame @Sean cocodamol is still available over the counter in the UK When I had COVID in 2022 I had to get my sister in law to buy cocodamol for me as the paracetamol didn’t make any dent and I can’t have ibuprofen due to my BP medication.
  10. NelliePledge

    Studies and data on Post-exertional malaise (PEM)

    The exasperated type didn’t dawn on me :D
  11. NelliePledge

    Studies and data on Post-exertional malaise (PEM)

    Hair pulling?? Never seen anyone mention that.
  12. NelliePledge

    Psychocorporal approach to functional somatic disorders 2024 Kachaner, Lemogne and Ranque

    This avoidance bs makes me so angry. It is not catastrophising to say if I go to x family event I will get PEM for as much as a week afterwards because despite knowing this I do in fact go to family events and I do in fact get PEM for several days.
  13. NelliePledge

    Participatory design of bodysymptoms.org: An interactive web resource to explain multisystem functional somatic symptoms 2024 Saunders, Burton et al

    Surely not evidence of an avoiding behaviour ie not mentioning Sheffield in case they finally cotton on to his real agenda.
  14. NelliePledge

    Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al

    As well as FND all psychosomatic efforts are post NICE 21 obviously going into promotion of MUS to reclaim the ground lost.
  15. NelliePledge

    : TV casting call for people living with ME/CFS

    Well Netflix have history so I wouldn’t be surprised it it was them
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