If people have situational depression and there’s no control over the situation it may be necessary to be on anti depressants for longer term than 2 years. In my case I had minor depression for a decade and once my parent with very severe dementia eventually died I actually proposed to my GP...
@PhysiosforME i wonder if education reach could involve something like the MEA do with the purple book sending it out to GPs. If a way of getting your book out to trainee or newly qualified physios. Perhaps funded by a grant and or crowd funding
I’ve only ever passed out once due to violent coughing. That was during the 10 years when I had undiagnosed ME. But I don’t think is related to ME. I have hypertension which was first identified around the time of the gradual onset of my ME. But everyone in my immediate family had/has...
Thread for the paper https://www.s4me.info/threads/systems-modeling-reveals-shared-metabolic-dysregulation-and-novel-therapeutic-treatments-in-me-cfs-and-long-covid-2024-gong-hua-et-al.39002/
You’d probably need to do it 2 or 3 times a day to capture the variability
I am one of the people who start off at my worst level of functioning and am at my best later on. Assuming I’m only pottering around the house that is. A big activity especially outside home will immediately affect my...
That’s a shame @Sean cocodamol is still available over the counter in the UK
When I had COVID in 2022 I had to get my sister in law to buy cocodamol for me as the paracetamol didn’t make any dent and I can’t have ibuprofen due to my BP medication.
This avoidance bs makes me so angry. It is not catastrophising to say if I go to x family event I will get PEM for as much as a week afterwards because despite knowing this I do in fact go to family events and I do in fact get PEM for several days.
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