Exclusion criteria for all participants were: (1) ME/CFS, (2) chronic pain disorder, (3) recent post-covid, (4) current suicide risk, (5) current...
She has around the clock care and can avoid PEM. She’s probably also lucky. She might have responded to some treatments, but that’s just...
Metal is probably lighter if that’s a concern. I don’t have any links, though.
They could have concluded that the evidence for CBT is very weak due to the lack of blinding and subjetive outcomes. We don’t know this yet....
If there is no effect in a pilot, there’s no reason to do a larger trial. The bias of smaller trials will usually lead to an artificially larger...
I’m leaning more towards Sean here. Mostly because LC is becoming such a massive problem that it will be impossible to ignore at some point. The...
This makes me believe that they’ve never encountered a severe or even moderate patient. If they have, there’s no excuse for this paper.
Fair point. But what about access to care? That’s notoriously difficult for ME/CFS-patients. My intended point was about close family’s ability...
And what about PEM from taking a bath? It doesn’t require more movement, but the stimuli seems to really mess with every single system.
Maybe the different responses to different types of exertion is something we should try to highlight in a future fact sheet? Idk if there are any...
I would be willing to bet that ME/CFS patients need more care from close family than most MS and Parkinson patients. Due to: less help and lower...
Don’t quote me on this, but I believe that there’s only one national fee. I don’t know if it’s distributed based on membership numbers in the...
@Yann04 you could also argue that if the patients are getting better (i.e. less symptoms), then why change the approach? Why not let them continue...
Auto-translated from German. I added some line breaks. What makes “Miracle” special "Miracle" looks where others don't look - for example at the...
I imagine Landmark, Wyller, etc. believe that they have discovered how something works. Chasing «I know something» is a slippery slope that...
I’m amazed at how many studies you find, remember and understand, @forestglip I don’t have the head to search for things now, but I wonder if eg...
I fully agree. But they don’t know that, or they refuse to acknowledge it. In principle, yes. But the HIV patients had to riot to get anyone to...
I’ve started just calling it Psycho. That being said, I still believe that we shouldn’t discriminate based on the subject, we should discriminate...
Why? They already have effective treatments (in their opinion). Most politicians don’t care about actually making a difference, they care about...
I don’t think it should be limited to biomed, that would create undue bias. It should, however, be limited to studies of the highest research...
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