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My DNA is about 70% from North West Ireland, though I consider myself to be English. I have often idly wondered whether I might have haemochromatosis, as my ME symptoms are vastly improved for a brief period if I have blood taken. The more blood, the better. However I have never had any...

When I told my nurse practitioner that I had ME, I was dismissed with "oh, we don't see much of that these days". Well why is that then ? Presumably because everybody is now being told they have POTs, MCAS, EDS etc. All of which are experienced by people with ME. This is a cunning way of hiding...

I don't have better creative writing skills than you. Let's face it, there are simply too many psychologists. There's was a shortage of work for them once the ME/CFS gravy train dried up. Fortunately Covid came along, so now they can keep their pointless careers going by wheeling out the same...

In the first decade of my illness, when I was more severe, my family could tell how ill I was feeling by the sound of my voice. It used to go all strange, high pitched and crackly. I have seen photos of myself from that era and my face is pale and mask like. Smiling clearly required too much...

I have long wondered why the medical profession hasn't looked into this phenomenon more, as it would surely give insight into the nature of ME. I had the very first version of Covid, before the jabs were brought out. I was very ill with a high fever, but somehow I simultaneously felt...

I have had ME for 26 years. For the first decade I lived near London, and I often described my symptoms as the sensation of feeling "poisoned". Or a cross between the world's worst hangover and the worst flu I had ever had. Nothing ever budged that feeling. Then I moved to a very quiet coastal...

Interesting. I have had a similar experience. About 20 years ago my doctor told me my Vit D levels were ridiculously low. I was told to take vit D supplements. The supplements, made my ME worse. Terrible brain fog, flu like feeling. So I gave up and figured maybe I was meant to have low Vit D...

If you are in the UK you may well have the hideous cold bug that is going round. It feels like flu but not quite and it feels like a cold as well. It is absolutely exhausting. I have had it for 3 weeks so far. The day before I went down with it, I actually started cleaning my house...

You sound a bit like me. I drink as well. Only one drink a day. Whisky. I have found that if I stop, after 3 days my cognitive function declines and I have difficulty even getting out of bed. I come from a long line of very heavy drinkers and smokers who lived healthy lives up to their late...

I have never been a smoker, but have discovered that if I vape small amounts of nicotine, it enables me to have enough cognitive function to do paperwork. I don't vape daily, just when I need to focus on something difficult. Cognitive dysfunction has always been my biggest symptom. For years I...

This is hilarious! Sorry, slightly off point, but I seem to recall that just a few years ago Wessley was wafting about holding hands with Royals, and insisting that there was an epidemic of undiagnosed mental health problems. Now he is going to investigate why there is an over diagnosis of...

"One particularly notable hit was rs2734833, an intronic variant in DRD2, a locus with pervasive psychiatric and sleep associations. DRD2 encodes the dopamine D2 receptor, which influences motivation and cognition and is the primary target of most antipsychotic drugs. In addition, DRD2 was one...

Sadly just the kind of drivel I have come to expect from the Guardian, which long ago gave up the pretence of being an actual newspaper. So on the plus side, hardly anybody will read this article. I find it strange that the father confidently declares that ME is "an umbrella term" given to lots...

The problem is that once you have a diagnosis of ME, GP's attribute everything to it. I suspect if I went to my GP with my arms and legs hanging off with blood spurting everywhere, he would say "that will be your ME". Though in this case the dead, arms etc probably is the ME. I had it for...

Maybe the therapy was so pointless and boring, it actually made the subjects fall asleep....

So many things I could say about the DWP. One of my closest friends (a High Court judge), looked at the file of correspondence from them I had collected, and described them as "a rogue department". I used to be a government lawyer and I am afraid I have to agree with that sentiment. I always...

At the end of the day the only thing that matters to all governments, is money. They don't care about human lives. The blob obviously thinks it is still more cost effective to downplay the severity of our condition and ignore us. Perhaps if they realised the true cost of this illness to the...

No idea what it would do for someone with ME. However my nephew has rapid cycling Bipolar 2. He does seem to find that a swim in the sea helps. I think Bipolar 2 is basically just brain chemistry gone haywire, so maybe cold water swimming would help any neurological condition? Personally I can't...

According to this, I don't exist. My onset was sudden but not post viral. I went to bed normal and woke up barely able to move my arms and legs. My onset was also gradual, like MS. Sudden repeated attacks of neurological symptoms, with total remission in between. So a sudden but gradual onset...

No wonder this country is virtually bankrupt when people are paid to produce things like this. Just imagine if instead they spent the money developing some decent painkillers. As for the harm caused by "chronicity rhetoric". I developed ME back when the medical profession just denounced...