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Perhaps not that interesting of a read but it is a very interesting discovery for people with ME. You may recall the metabolomics study of 2017 that found that our profile was the same as dauer - a reduced metabolic (hibernation like) state in nematode worms. Well this research has found that...

@Amw66 did you ever get a response from the Scottish universities that you contacted about CPET availability and charges?

I think that it is a pretty awful article. She did a very poor job researching her own question. We need to tweet the author (@laurelives) and her editor (@BBCHughPym) and tell them!

A general question based on comments, how is "push-crash" a better phrase than "boom-bust"? The later is an everyday phrase, the former seems specific to ME. When the target audience is the general public, would not boom-bust be better?

I have added: "Basic premise of the scale ME limits energy output and the ability to recover from energy expenditure." I am wondering if the key to ME severity at the top end of the scale is recovery. Does our inability to recover stay constant? Does it get worse at the same rate as our...

I need to describe 99% for @Bill. Can anyone help with that? I really have no idea. Would it have to start with the same energy output as 100%? My initial thinking was that this degree of output is recovery. However, if someone with ME can keep up with healthy people then what are their...

I have changed work to High activity. I just had a look at the Bell scale. I probably saw it years ago. Another scale that really wasn't very good. I am hoping that we can do a better job! :) @Bill, I have also explained the origins of the scale to better get across how it is based on an...

@Bill, You still don't seem to be understanding the scale, and it has taken me a while to understand where you are coming from because I couldn't understand where you were coming from. I have changed the wording to say, "By definition a person with ME cannot be 100%." Does this help? So the...

@unicorn7 Thanks very much!!!

Thanks very much @Samuel! Those links are brilliant!

I have been working on an alternative scale. It may please people even less than before though. Like the current scale it is based on four categories of activity: Work - Moderate - Light - Nothing The 100% assumption is an output of 70 hours of work per week, 28 hours of moderate activity...

@Bill, At the moment the scale doesn't address the top end at all and I am working on this. However, I don't think that you've understood what 100% is. 100% represents someone who doesn't have ME and is perfectly healthy, and probably fit. If you didn't meet that requirement than you couldn't...

@Trish, I started off hours per day but that became complicated because of fluctuation. A weekly measure averages this out. However, I do suggest in the intro that people use the daily averages and create a functional range. Because of the way the scale works, their norm will be closer to the...

Thanks everyone for your feedback and thanks to @Tom Kindlon for sharing. Most, if not all, of the criticisms here are valid. This is why I am sharing it. I needed a larger pool of feedback. The starting point of the scale was defining what 100% can do and than halving it. I chose to halve...