In November, as part of the UK Malnutrition Awareness Week, Helen Baxter of The 25% ME Group gave a presentation at the Malnutrition Taskforce...
It is 2 years since the new NICE guidelines, and Epsom and St Helier's ME Service has not been updated. Information sheets include the following:
Thank you. I'll look into it.
There is now a Twitter account for the End Malnutrition in ME campaign supported by The 25% ME Group. If you are on Twitter, please follow...
Many thanks JemPD.
Page 12 of the APPG report Rethinking ME states: Most people will experience a degree of improvement over time and then stabilise at a lower...
I wonder if a letter to the BMJ might be in order. This could point out: ยท There is a lack of research into gastrointestinal symptoms in...
IMO there are three approaches. 1. Increase awareness among healthcare workers that problems with eating and digestion are a consequence of ME. 2....
I don't have any particular scientist in mind, but (to answer a different question) in my fantasy Institute of ME Research I would have the...
Caderousse's wife La Carconte in The Count of Monte Cristo, possibly. She is pale, thin and sickly, and spends most of her time in her room either...
It is a very good question and worthy of a research proposal, IMO. I do remember this being discussed years ago on another forum, but I can't...
The Son by Jo Nesbo has a minor character who has ME. He is a drug addict staying in a hostel, spending most of his time in bed with the curtains...
Thanks for posting. These bolus doses (a large single dose) don't work, and are potentially harmful, because they induce inactivation of vitamin D.
Last week I had midazolam and fentanyl for a procedure. It was not a general anaesthetic but conscious sedation and local anaesthetic. I had no...
Best wishes to you.
It is clear that they will continue to do their best to thwart any progress.
Javid's statement is very encouraging. I feel real hope in my heart that things will change, the healthcare system will understand our needs as...
"Historically defined as GI conditions with no organic basis, FGIDs are now believed to arise from neurogastroenterolog- ical disturbances and...
I was thinking in terms of wasting and weight loss, which could - and should - be prevented if appropriate nutritional support is provided by...
I would like to see a campaign to end malnutrition in patients with severe ME. For this purpose, I am currently gathering information so I can...
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