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I have a seat similar to this, Streetwize LW7 Walking Stick Chair https://amzn.eu/d/4T4vE0g Although taller than some folding seats, I think it may still be a bit too low for use in the kitchen

Reply on FB from Charles Shepherd

I have left a message on their FB post promoting the survey

The ME Association survey doesn't allow you to vote unless you tick at least one box. Even for an informal survey, this will presumably give an inaccurate result.

30 years 6 months mild Rapid decline over 4 months to moderate/severe mainly housebound - medically retired Slight movement to moderate/partially housebound for approx 18 years 9 months improve to middle moderate 5 year moderate/partially housebound 4 years moderate/severe housebound.

It seems that this proposal has been withdrawn. Screenshot from https://www.mi-vote.com/

This is Peter White on Twitter discussing the Guardian article. He is open to feedback on improving communication with journalists.

I have found cheap furniture gliders really useful for moving furniture. I haven't moved anything really heavy, but have moved fridge, sideboard very easily. The hardest job is getting them under the item, 2 people a lot easier than one. Not sure I'm allowed to link, but screenshot shows the...

If anyone is up to it, at the bottom of The Huffington Post article, there is a "suggest a correction" button. But it is limited to 1000 words;)

Split from NICE pauses publication of updated ME/CFS guideline hours before publication was due - 17th August 2021 Recent ME Association post on twitter, with link to template letter for MP's Edited to add direct link to ME Association page...

Without wanting to add more confusion to the already confused on this subject, but I think it has only been posted on Dr Hng's page, and is not a request from Dr Hng herself. Edited for clarity

With apparently further videos to follow, where presumably he will expand on the "knowledge and "techniques needed to deal with symptoms, and help to recover" (paraphrased). Is it significant that the first line is "I am a Professor of infectious diseases"? Is this done to try and give it...

I was a recipient of a Merryn Smile a couple of years ago. It was the most wonderful surprise. The gift itself was so thoughtful, snuggly blanket/throw, bed socks, an eye mask, and a rose quartz heart (Merryn loved rose quartz). I was nominated by an online ME friend, and to know she thought of...

#NEISvoid stands for "No End In Sight" void As I understand it, it's purpose is to shout out, or draw attention to a tweet, to others with chronic illnesses. I believe any diagnosis is welcome.

BBC Article from 2011 entitled "Torrent of Abuse Hindering ME Research". The two interviewees are Simon Wesseley and Myra McClure. https://www.bbc.co.uk/news/science-environment-14326514

My award was due to end July this year. I received notification of an extension until April 2022. However, I have heard anecdotally that some have received an extension then shortly after received renewal forms.

I take tramadol and over the counter paracetamol on an (as needed) occasional basis. Doesn't control pain, just diminishes it to a more bearable level. Flu like aches, muscle and joint pain are constant symptoms.

I use Ocado - prior to Covid they were the only supermarket still delivering in bags, and for me unbagged deliveries require much more energy. In case you are unaware, Ocado's contract with Waitrose finishes end of August and the new contract is with Marks and Spencers. The M&S products are...

I agree, unfortunately the concept and definitions of PEM is too open to interpretation, and in certain circles PEM is seen as the only definitive symptom of ME. So "malaise after exertion" becomes ME, disregarding all other symptoms.

There is a survey on Pheonix Rising which gives gives information on negative or positive diagnosis for each surgeon. However,I don't think it says whether surgery is recommended Link to thread & survey spreadsheet...