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  1. RuthT

    Audio distraction: podcasts, audio books, radio on demand

    If you like detective light fiction, Sarah Paretsky’s VI Warshawski is on Sounds atm. Bonus is Kathleen Turner playing VI - a great action character who gets herself into scrapes along the way. 6 30 min episodes https://www.bbc.co.uk/sounds/brand/b00f85ps
  2. RuthT

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Why not give patients a portable annual budget to spend wherever they want for support or care, pending evidence base for interventions that work.
  3. RuthT

    Audio distraction: podcasts, audio books, radio on demand

    So glad @Trish You may also enjoy Clare in the Community - Sally Phillips stars as inept well meaning social worker - whole series is there https://www.bbc.co.uk/sounds/brand/b006qprs
  4. RuthT

    Audio distraction: podcasts, audio books, radio on demand

    On BBC Sounds, tucked away, there are 55 episodes of The Boring talks. Hits the sweet spot to occupy the mind, but rarely over-stimulating eg The Taxonomy of Cornflakes, Ice Cream Vans. The one exception so far was Carry On Shakespeare which was an excellent & engaging talk by Samira Ahmed...
  5. RuthT

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I wonder if Hammond is, inter alia, on a fishing exercise - Sharpe used to do this to gather evidence of trolling. Also has the feel of a DARVO manoeuvre, stage 1: Deny issues (with clinics) stage 2 Attack critics: especially easy if trolling occurs & reinforces long term narrative Stage...
  6. RuthT

    REDUCE Research Programme - KCL T.Chalder

    This type of research seems more like funding to enable a successful pitch for work!
  7. RuthT

    REDUCE Research Programme - KCL T.Chalder

    Can we apply for a study of her research methodology, acronym DEFUND?
  8. RuthT

    Anyone else in the U.K. had a letter about a covid testing study?

    I’ve just done the IPSOS/Mori test - swab just like at test centre, but much easier than doing it in the car. Lots of good information about how to do it & a video to watch too. Once you’ve done it once, it isn’t too bad, just a bit uncomfortable, but I’m happy to be the one doing the tonsil...
  9. RuthT

    Audio distraction: podcasts, audio books, radio on demand

    The Annika Stranded series on Sounds is good detective series set in Norway, female lead. 15 min short episodes, narrated by the main character, wry stories, not gruesome. You have to search for them https://www.bbc.co.uk/sounds/play/b01pz5jg
  10. RuthT

    Audio distraction: podcasts, audio books, radio on demand

    I also have to say I’m a huge fan of This Week In Virology podcast - TwiV. Just love listening to virologists and others who *know things* talk over Coronavirus & other virus issues - assessing the current state of play, acknowledging when they get things wrong & calling poor research out. I...
  11. RuthT

    Audio distraction: podcasts, audio books, radio on demand

    Boring Talks - This a BBC series I turn to quite a lot of I’m sleepless & all the usual strategies don’t work. I find it occupies my mind just enough, but it lives up to its title, and usually helps me to get back to sleep or at least rest with mind engaged...
  12. RuthT

    Audio distraction: podcasts, audio books, radio on demand

    This is a beautiful podcast from Melissa Harrison, a novelist and nature writer. Ever episode is like a step into the Suffolk countryside. It’s very quiet, relaxed & human with lots of nature sounds, a bit of poetry, a guest, a bit of this and that. Some chill background music, not jarring...
  13. RuthT

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Interesting. I know this service. In this time frame. Poor CBT delivered by one of their ‘top‘ people who trains others. I didn’t submit a complaint at the time, just withdrew with my GP consent due to terrible note taking and significant fundamental factual inaccuracies made in a basic...
  14. RuthT

    The biology of coronavirus COVID-19 - including research and treatments

    Reports from Daniel Griffin in New York of two COVID19 infections second time round in this & a previous episode of TWiV - also nastier second time. He considers the possibility that it is one of those viruses that get worse, not better each time. Two cases is an anecdote, but needs watching...
  15. RuthT

    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    Yes, I was thinking of the appropriateness of a referral for investigation rather than a class action. Also greater powers for Competition Authorities to conduct their own investigation. It’s an angle worth pursuing given the relatively few people dominating research, ‘treatment’ and media. I...
  16. RuthT

    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    @Valerie Eliot Smith Have you thought about contacting the UK Competition and Markets Authority about potential monopolistic practices of one ‘school’, including dominant position in media reporting. Do PM me to explore. Have reason to think it might be an option.
  17. RuthT

    NeuroPsychiatric conditions Post COVID-19

    It’s the description of side effects as neuropsychiatric and the calling on of the expertise of Wessely in these Tweets that disturbs me: a grab for the new market, an extension of the existing regime just as it is coming under fire.
  18. RuthT

    NeuroPsychiatric conditions Post COVID-19

    A worrying approach being actively anticipated and encouraged:
  19. RuthT

    Citizen Science Project - COVID-19

    The website link: https://www.zooniverse.org/projects/h-spiers/etch-a-cell-powerhouse-hunt
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