Search results

The other one isn’t much better:

That seems very narrow - I doubt most LC patients ever end up at a hospital.

I struggle to remember names so excuse my ignorance here! It’s good that he’s familiar with it and great if he can help the others.

This is how they tried to do it: They also hid this gem outside the abstract: the catastrophizers held their hand in the ice-water for longer! They try to claim that maybe the study was underpowered due to the large standard deviations for repeated ice water tests, even though they made a...

That’s great news! Tangentially relevant: what can be done to help researchers that are new to the field to get up the ME/CFS learning curve as quickly and efficiently as possible? What’s essential for someone new to know?

I don’t have access so I haven’t seen the data, but the abstract makes it clear that it was a complete null result so it might be useful to have as a reference.

The causal status of pain catastrophizing: an experimental test with healthy participants Severeijns, Rudy; van den Hout, Marcel A.; Vlaeyen, Johan W.S. Abstract In the current study we report findings on the effects of experimentally induced catastrophizing about pain on expected pain...

That’s not much to go on. Have they said more elsewhere?

It seems like there might have been a deviation for the trends between 2018 and 2022. That would be as expected with both the strain of living in a pandemic and more importantly widespread and frequent covid infections: The authors appear to be focusing on the psychosomatic angle.

The NIH effort preference study had a few complete remissions without any intervention. If you look at lp-fortellinger.no you’ll find many stories of people doing far more than they used to for a long time before eventually crashing. I know a person that abruptly recovered from 2-3 years of...

Fair enough. You seemed neutral to testing it on severe pwME/CFS, which confused me.

Why are people still doing trials without long term tracking of activity levels? Exclusion criteria: Is there anything about how they think the drug might work? From my googling it seems like it blocks the PD-1 receptor that T-cells use to connect to your own cells to tell the others to no...

To paraphrase yourself: sure, it’s also possible that you’ll feel better from eating a banana. What happened to getting people to stop wasting resources on trialling things without any good arguments for why it might work? I agree that studying healthy people isn’t useful here.

Uhm, what do you base that on? Is watching their HR during stress exposure, being told to use a breathing app and visualising a calm place supposed to be helpful for severe pwME/CFS that struggle to eat?

There is a three month feedback period. I’m not sure how the associations intend to respond, and what they will put the most weight on. I doubt it. The people involved from the department don’t seem to fully understand what they are doing. They seems to believe that «clinical experience» and...

This is from the section where they talk about the most severe. There is no mention about deaths. These are back to back paragraphs. It feels like it’s written by two different people. Is this what compromise is supposed to look like?

It’s correct in Norwegian, the autotranslation messes it up

«Our arbitrary scale matches other arbitrary scales so our scale has good validity.» I wonder if they will ever learn..

The guidelines are packed to the brim with BPS and misinformation. It’s truly a muddle.

Partially because even basic scientific concepts are not includes in their training. Just looks through the publicly available subjects for medical degrees at universities. For the same reasons that any other profession don’t call out each other, take your pick: loyalty to their peers...