Excellent way of putting it. I, too, use "difficulty processing sensory stimuli" rather than "sensory hypersensitivity" for all the reasons...
I can indeed confirm that we Yanks still tend to typically use a kettle on the stove (though I do use an electric kettle here in the bedroom--and...
::breathing a huge sigh of relief:: For years I've been thinking this forum would be a goldmine of knowledge for putting something together that...
Yeah it's been a real mixed bag for me. I started having missed/late periods in 2019 and by Christmas was actually able to enjoy myself at my...
I really think this study deserves an award of some sort. I don't think I've laughed as hard after reading an abstract as I have for this study....
I have begun to wonder if there might be multiple switches that cause a similar response (i.e. ME/CFS). About a week after one of my last periods...
Perhaps I'm being a right cynical bastard here, but is the issue that they can't copyright FUNCAP and charge licensing fees for it? Am I mistaken...
So I suppose the answer is we're all in one big group based on symptoms until those biological measures are found?
How do we tease out whether it's just one group or multiple groups?
I have been wondering for some time if we put too much emphasis on exertion in whatever is happening in this thing we call "post-exertional...
Just to be a pedant, but "ME/CFS" is merely an abbreviation, not an acronym as it does not form a word. See "acronym."
Agreed. Though I could imagine all they would need to do is add a sentence or two stating something about in extreme situations extraordinary...
Er...do they really think any busy HCP is going to read multiple pages on how to accommodate pwME/CFS? While it's not specific to hospital care,...
There was definitely a gap but it's difficult to remember how long it was. I started having frequent flu-like illnesses within a month or two of...
I'd be curious about the history of the Beighton Scale. How was it decided that the hypermobility of the joints in the scale were indicative of...
Merged I noticed this interview hasn't been posted and felt it adds to our ongoing discussions about issues around feeding for those severely...
Nuff said.
When I talk with providers, I use the term stamina for sensory stimuli. If I need to explain further, I point out that dodgy governments all over...
We have a bakery here in Portland that uses a millet starter and it's not half bad. It actually tastes like bread rather than a dish sponge,...
I'm surprised nobody has pointed out the absolutely galling patient-blaming: (Emphasis mine)
Separate names with a comma.
