Thank you, Simon! Writing poems and texts helped me tremendously during my first years with ME. An outlet for the soul.
It’s such an honest, heartbreaking and yet hopeful article! Thank you, @Simon M and @Chris Ponting! Your words, Simon: “It’s like I’m surrounded...
Sorry to hear it can be this much of a problem for you! It’s quite scary not to be able to rely on the brain working like it used to. I can’t wait...
Interesting! I found the symbols number 5 and 6 to be the most difficult ones, that’s when my mind froze. But you are right in that it might be...
I tried to take the DSST test that @forestglip posted above. During the course of the test it took a longer time to react and draw the symbols,...
Thanks @Murph for the explanation! Will be interesting to see further details!
Sorry, I misunderstood their words “3-D in vitro skeletal muscle” and “3D skeletal muscles exposed to ME/CFS and Long COVID-19 sera.”
This is amazing work! Brilliant idea to use 3D-printed muscle tissue. (Edit: not 3D-printed, but still a brilliant idea to use 3D.) Hasn’t...
Yes, the day before I know I have catched a virus I get some kind of neurotransmitter imbalance with both more easily triggered orthostatic...
I find this paper interesting, but wondering if anyone with more knowledge and research experience has any thoughts on it?
No one has claimed to know the root cause to ME or the exact biochemical reactions. But Jonathan expressed that he was interested in the...
It seems as though you are looking especially for an explanation regarding the variability in ability in severe and very severe ME-patients? And...
When I crashed severely for the first time I had tried to walk to our mailbox outside the house. Soon the legs began dragging and once I was back...
Great that you are sending them a letter regarding this! My vote is on the second one, the one which includes “patients who have been harmed by...
The same for me. I had to eat day and night during my worst PEM crash. The body burned energy like never before while being bedridden. I lost a...
Hi, @MelbME! Just wanted to know if you have read this recent research about low vasopressin in ME-patients and the suggestion of diabetes...
Is the article comparable with this one in any way? Or are they unrelated regarding their findings?...
Amazing work @Arvo! This is truly terrible and needs to be investigated further. It needs to come into light that they have it all set up. In...
Such emotive article/study to read, they truly listened to the people with Long Covid and captured the essence of living with it. Much recognition.
Has anyone asked them to do a similar study as this one, but on/with people with ME?...
Separate names with a comma.
