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  1. wigglethemouse
    Post

    Preprint System and Method to Determine ME/CFS and Long COVID Disease Severity Using a Wearable Sensor, 2024, Sun et al

    This 55 person 7 day wearable study is a follow-up on the 15 person 6 day wearable study that first was reported on in 2020....
    Post by: wigglethemouse, Apr 12, 2024 in forum: ME/CFS research
  2. wigglethemouse
    Post

    Longitudinal Cytokine and Multi-Modal Health Data of an Extremely Severe ME/CFS Patient with HSD Reveals Insights... 2024 Jahanbani et al

    One of the authors, Whitney Dafoe, provided some background on the creation of the severity scale that is in this paper. See post #6 by @Dolphin...
    Post by: wigglethemouse, Apr 10, 2024 in forum: ME/CFS research
  3. wigglethemouse
    Post

    USA: From Solve ME - Educate your Members of Congress about a "HOME" for IACCIs at NIH

    I'm happy to report that I received an email from Solve Executive and Advocacy Manager that the Tweet issue has been fixed after I reported it....
    Post by: wigglethemouse, Apr 9, 2024 in forum: Advocacy Projects and Campaigns
  4. wigglethemouse
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    To me the simple answer is that it has been very hard to get a diagnosis of ME or CFS or ME/CFS or CFIDS in the US whereas in the UK there have...
    Post by: wigglethemouse, Apr 9, 2024 in forum: General ME/CFS news
  5. wigglethemouse
    Post

    USA: From Solve ME - Educate your Members of Congress about a "HOME" for IACCIs at NIH

    I emailed details of the problem above to the email address I have for Emily.
    Post by: wigglethemouse, Apr 9, 2024 in forum: Advocacy Projects and Campaigns
  6. wigglethemouse
    Post

    USA: From Solve ME - Educate your Members of Congress about a "HOME" for IACCIs at NIH

    After completing the tool it takes you to a page where you can tweet your reps/senators. The "link" where it should place a link to a document is...
    Post by: wigglethemouse, Apr 9, 2024 in forum: Advocacy Projects and Campaigns
  7. wigglethemouse
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    From the document you posted.
    Post by: wigglethemouse, Apr 7, 2024 in forum: ME/CFS research news
  8. wigglethemouse
    Post

    Mitodicure GmbH applies for 3 patents for ME/CFS drugs

    A bit more digging on the first patent. NHE1 is also known as SLC9A1. This particular gene was highlighted in the Wirth and Scheibenbogen papers:...
    Post by: wigglethemouse, Apr 5, 2024 in forum: General ME/CFS news
  9. wigglethemouse
    Post

    Mitodicure GmbH applies for 3 patents for ME/CFS drugs

    I Just looked at one patent. It seems very broad scope claiming anything that acts as a NHE1 inhibitory agent. Claim 14 gets a bit more...
    Post by: wigglethemouse, Apr 5, 2024 in forum: General ME/CFS news
  10. wigglethemouse
    Post

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    In video #010 in the comments section Jarred Younger gave an update on the Good day / Bad day study and the reason it has been delayed. "Thanks...
    Post by: wigglethemouse, Apr 5, 2024 in forum: ME/CFS research news
  11. wigglethemouse
    Post

    MECFS data analysis thread

    I just came across the data for Lipkin & Fiehn 2022 metabolite paper in case you haven't seen it @Murph...
    Post by: wigglethemouse, Apr 5, 2024 in forum: Other research methodology topics
  12. wigglethemouse
    Post

    Portugal: 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID, 3rd & 4th April, 2024

    Lipkin reported elevated succinate. https://www.medrxiv.org/content/10.1101/2021.06.14.21258895v2 And so did this Long Covid study (figure 2)...
    Post by: wigglethemouse, Apr 5, 2024 in forum: General ME/CFS news
  13. wigglethemouse
    Post

    MECFS data analysis thread

    It seemed from the Berquist presentation where those slides come from (Lisbon Conference Apr 4th 2024) that they really wanted to dive into the...
    Post by: wigglethemouse, Apr 5, 2024 in forum: Other research methodology topics
  14. wigglethemouse
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    At the Lisbon conference on Apr 4 2024 Dr Inderjit Singh from Yale presented that they are currently devloping a leg exercise test where they can...
    Post by: wigglethemouse, Apr 5, 2024 in forum: ME/CFS research
  15. wigglethemouse
    Post

    Portugal: 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID, 3rd & 4th April, 2024

    Day 1, Apr 3rd video is on YouTube here [MEDIA] And this is day 2, Apr 4th video [MEDIA]
    Post by: wigglethemouse, Apr 4, 2024 in forum: General ME/CFS news
  16. wigglethemouse
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    At 24:33 in the video the following slide shows ME research funding spend (in GBP1,000's) by the UK charities and UK national funding bodies [2020...
    Post by: wigglethemouse, Apr 4, 2024 in forum: Fundraising
  17. wigglethemouse
    Post

    Reinforcing the Evidence of Mitochondrial Dysfunction in [LC] Using a Multiplatform Mass Spectrometry-Based Metabolomics Approach, 2024, Martínez +

    Tess Falor on a Twitter thread about the Lisbon conference presentations reported Jonas Berquist & Chris Armstrong have been doing home and...
    Post by: wigglethemouse, Apr 4, 2024 in forum: Long Covid research
  18. wigglethemouse
    Post

    Reinforcing the Evidence of Mitochondrial Dysfunction in [LC] Using a Multiplatform Mass Spectrometry-Based Metabolomics Approach, 2024, Martínez +

    Access to the Supplementary information is available here with no paywall...
    Post by: wigglethemouse, Apr 4, 2024 in forum: Long Covid research
  19. wigglethemouse
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    I've been watching the video over a few days. It is very thought provoking with a lot of work put into presenting a pretty convincing story. Peter...
    Post by: wigglethemouse, Apr 2, 2024 in forum: Fundraising
  20. wigglethemouse
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    I'm not able to watch the video :( so I hope there will be a blog post form. It is an important topic. Pilot funding for research is so important....
    Post by: wigglethemouse, Mar 29, 2024 in forum: Fundraising
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