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It will be interesting. A regional association was hijacked by a group of people who, as well as ME and Fibro, had a lot of other injustices to fight. It shredded the group.

Thanks for that, I'll look into Citrulene. Ivabradine changed my existence. Really good, made a big difference.

Sorry, it's a bit more complicated than that. And I didn't use proper terminology. The effect of acute inorganic diatery supplementation on flow-mediated dilation in people with long-COVID and people with ME/CFS: A feasibility and pilot-study. 98% Concentrated Beetroot Juice 2% Lemon Juice...

A follow up study is starting soon. Two visits, double blind trial. Beetroot juice ingestion and doppler v's water and doppler. No-COVID. West of Scotland University. Was keen to take part but really not sure due to circumstances.

They are looking for potential participants. It would involve 2 visits to a University in the West of Scotland. A week between visits. The doppler was one day, one test. Included with other tests. Gait sitting standing etc. I don't know what the significance is of a double visit. I...

I was part of this trial. It was a one part of a bigger trial. They are planning to do a large scale trial and are seeking to secure funding. It's almost conical that when I took my results to the GP. The doppler test result put me in the bottom 5 percentile of the population, he took one...

Good news. D&G are looking to set up a ME/LC service. Consulting now with patients. Sketchers on the ground, speaking and hopefully listening to people with experience, is a start.

I have complete confidence in my smart watch. Long term. I bought an oxygen concentrator in Januaray. The stats are completely different from the previous year. I can't see how this data helps me apart form confirmation that I feel better.

Newcastle Utd had at least 2 cases. The medical people at Newcastle must have an extensive collection of data.

An article from the Police magazine regarding LC and the impact. https://1919magazine.co.uk/march2023/?i=3 Last nights lead story on BBC was about LC. There does seem to be people in Scotland wanting action. However, the problem might not be the political or cultural will but what actually...

This is really bad taste. Poor visitor figures V's a serious life altering medical illness. https://www.bbc.co.uk/news/uk-64976013

Does this help? https://www.icgp.ie/go/library/catalogue/item/CA0B96D8-D563-4BDE-991FB99673ACEAAC/ Dated 2008. Found this discussion from 2010. Interesting read. https://forums.phoenixrising.me/threads/training-videos-for-english-gps-on-how-to-deal-with-cfs-patients.3079/ This is...

I have a spray. I've tried it on a number of occasions hen feeling awful. It made no difference apart from a slight headache. That's obviously just my experience. On the other hand using an oxygen commentator 90 mins a day has changed my life.

I'm sorry his is really brief. I'm not keen on posting a ton of basically thoughts on here which some people may object too. However, my watch app graphs heart rate over periods of 4 weeks. It's gone from jagged lower and higher to straight lines. I do the same each and every day. A very...

I have measured my oxygen properly in the past. My watch has an oxygen reading. Awake and when sleeping. As I said I don't believe it's accuracy but I do see trends. Same with sleep. I have tried all sorts over the years but with no success. Exception would be ibuprofen, nattokinaise...

I'm just a PWME. Watches are considered toys by my GP and in many respects I agree. The most reliable bit of kit is a chest strap. That's very useful. I'm same age/profile as you. Same life outlined in your second sentence. However, last month I hired an oxygenation compressor. It...

ME debate in Parliament today. Lack of progress. Sad. https://www.scottishparliament.tv/meeting/members-business-s6m-06112-sue-webber-scottish-government-commissioned-review-of-me-services-and-future-action-february-2-2023?fbclid=IwAR1LQJYFX8SfqafkquAkH0FQWDhsIVBI99aTT0X_vFVuLtfuD9UpXIf8Zuc

By coincidence I was watching this chaps videos last night. Including this Professor Jon Stone - Undiagnosing MS, including the accuracy of clinical diagnosis I don't understand any of this. As a lay person you should have respect for professionals in such positions. But he's a guesser...

When discussing the trial initially via zoom. I said that a tilt test would be useful. I was told that they couldn't access one. In the lab where the ultrasound took place there was a tilt table on the wall in the corner. I didn't get the ultrasound of my heart only on the arm. The...

I'm not sure. I had a number of back and forward emails to the Doctor who dealt with me after first opening the app.. I had the choice, I completed the app. 12 different sections. I was disgusted when I finished it and understood the extent they were going with anxiety etc. Also as a...