Search results

I believe that they may also be linked with OMF. He is listed as part of their ME/CFS Collaborative Research Center at Harvard Team: https://www.omf.ngo/scientists-working-on-mecfs-research-with-dr-ronald-w-davis-phd/

Something similar happened in the Seattle area a few years back, some viral infection affecting children neurologically that was equated to polio.

Not just a liar, his actions have been criminal. He uses his soft-science to harm pwME and their families. An institution like Columbia University should know who they are putting on a pedestal. This is akin to them giving the pulpit to someone teaching conversion therapy for LGBT+. It's not...

I appreciate the explanation provided by the authors here: "Benefits from CBT/GET therapy have also been reported for CFS/ME patients by other CTs (the PACE trials) including 160 participants per group, when compared to specialist medical care (SMC) alone or adaptive pacing therapy (APT) [30]...

I don't think this one has been posted. Dr. Klimas discusses her advances with Gulf War Illness and how she was able to use ME/CFS as a comparison model. She shows some great slides and discusses the direction she would like to proceed in for possible future clinical trials.

I hope this publication opens the door for more funding of Dr. Scheibenbogen's work.

I thought the series was terrible and sent the wrong message in terms of advocacy. The program consistently conflated psychological and biological problems. I don't know how much Jamison understood about how the content would be presented in final production. The first episode is not bad, but...

1. Autopsies, looking at nervous system tissues. 2. Not sure how this would work, being able to monitor brain waves through out the course of a week, where a patient can concurrently document what is happening that can be synced with the recorded data. ETA: Per #2, I go into strange cognitive...

I don't think I ever had superior cognitive stamina. I would often need to take power naps while reading during law school and would have bad lulls in the afternoons when working as a lawyer. On the flip side, my physical stamina was always very strong. I keeping thinking, "I do not have the...

Another example:

I agree you here @ukxmrv as the "the medical establishment" (wish Geraghty had used "UK medical establishment") has taken on the dual position of viewing the patient as militant while minimizing the seriousness of the illness. It leads to a loop, where any action of patient advocacy feeds back...

I see a common strategy in her writing: find a maligned/stigmatized group, describe them as militant, discuss why they are and should be hated, and make unsubstantiated claims of death threats. What strategy is not taken: approach issue with a level of curiousness and attempt to learn something...

I hope your publication helps inform NICE and future Parliamentary actions. Thank you sharing here at S4ME, @jayletay! I will be purchasing your book.

Good article and coverage. It's a pity that Lauren Stiles promoted exercise without caution seeing that a huge percentage of POTS patients have a dual diagnosis of ME/CFS (she did mention that many POTS patients are bedridden and I suspect that most of them are Team ME). As the head of...

That is what Cort is reporting on Health Rising.

Yes, the grant shows $775,000 for FY 2018-2019, but the project end date is 2023. So it's expected to refund each year for five years.

Someone clarified to me that it is $775,509 each year for 5 years.

The entire funding is for 5 year, but couldn't we expect more than one paper out of this research...so that some information is published before the end of five years?

Hopefully there will be some video. It sounds like many of the speakers have publications lined up, so that could be another reason. The PowerPoints will help to sort this out and then I'll have everyone's names too, so can start looking for published papers. I hope you do okay from all this...

Wow...that's a huge disappointment, they were so good in the past. Thank you, however, for the information!