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I haven't really been paying attention to research over the last couple of years but have NCNED published anything interesting enough to justify throwing even more money at them? They seem like a black hole sucking all research funding for ME/CFS in this country.

And here I was thinking all this time that doctors and researchers were already thinking it was a functional mitochondrial problem rather than inherently damaged or malformed mitochondria.

Anti-depressant withdrawal was what turned my diagnosed mild non-disabling MCAS into a full blown nightmare. Although I had already started developing ME at that time (I had a multi stage onset) it was also one of the things that made me a lot worse. It's pretty obvious in hindsight that the...

No doubt they'll develop an alternative to loratadine that's no more effective at breaking down biofilms just so they can patent it.

This is a single person case study? Seems this person must be atypical if they have amyloid deposits given that this hasn't shown up in other studies?

What's the difference between CRP and hsCRP? My CRP has always been normal.

Not just wellness advice but any kind of advice at all except maybe how to scam gullible people.

https://www.ncbi.nlm.nih.gov/pubmed/31083530 https://www.mdpi.com/2079-7737/8/2/27/htm This research is not explicitly about ME/CFS but I decided to put it here anyway because it's about CDR and because of the acknowledgements in the full paper:

https://www.timesofisrael.com/israeli-study-links-autism-to-general-anesthesia-in-c-sections/

My fibro pain basically disappears when avoiding MCAS/MCS triggers.

Has anything been said about the potential viability of this test for use in regular pathology labs rather than expensive specialty labs?

Combination of charities and state level government grants. The most recent federal level government grant hasn't be allocated to anyone yet as far as I'm aware.

My CK has been intermittently elevated for about 14 years now and it appears it could be related to MCAS. Anyone else had elevated CK? https://www.clinicaltherapeutics.com/article/S0149-2918(15)00074-0/pdf I need to have a muscle biopsy done but my doctor won't do it until my vitamin d levels...

Well, my stress event was a precautionary pencillin injection that destroyed my bowel flora for an infection I didn't even have (syphillus). I then came down with a viral infection a few days later because my immune system had been totalled. I then had multiple other stress events (too rapid...

From The Nightingale, Myalgic Encephalomyelitis (M.E.) Definition:

I think you may be misconstruing what is meant by "stressful event". A stressor in medical terms includes a lot more than just psychological stress even if it does also include that.

Please let it not get sucked into the black hole that is NCNED or even worse to BPS researchers.

But have they proposed an alternative?

The paper: https://www.nature.com/articles/s41396-019-0392-1 Full article: http://s000.tinyupload.com/index.php?file_id=10957232058281639868

I wish I could have some of this placebo effect when trying alternative therapies. All they've done in the past is make me sicker.