We do need this kind of information. I am glad they have looked at it. I was surprised at the conclusion that pain wasn’t a factor that...
Is it available for free? I can’t see how to read the full article without paying. it’s important work and I am glad they have published it. We...
Has anyone else received a text from the NHS about social prescribing? It has a link to this video [MEDIA] and asks me if I want “social or...
Well, I had to post something to my GP surgery so I scribbled a quick note on it for my GP about the CPD on ME/CFS. You never know...
Thanks. That is a useful thing the MEA are doing. I hope their ME essential magazine reflects people like me and covers some of the complex issues...
Yes I completely agree. It needs to be highlighted to them all somehow, but until NICE guidelines change I can’t see many bothering, and that...
I would like to share it with my GP and surgery but am hesitant as I tried to share a POTS information session before and got quite a hostile...
Should we invite Miranda to the forum? She’s really speaking out about chronic illness at the moment, including ME. She has not disclosed why as...
fair enough. For my partner going into a shop it’s just brief and may be better than cotton fabric alone?
If it was freshly applied the fumes would be inhaled and kill the virus? It says in the article that it can kill the virus in 30 seconds in the...
Does anyone know how make an iodine infused “filter” layer? It was mentioned somewhere on the forum that the Chinese recommended (I think) it for...
What is the Sheffield council helpline number?
1.5 million people in the UK considered “vulnerable” are about to get a letter telling them to isolate. I wonder how many people with ME will get...
I agree. I don’t think the cognitive issues are taken account of, especially in disability/benefits assessments. For PIP (UK) the assessors...
Glad to hear you will continue fighting with us David, I am glad you are at home and hope you & yours stay well. As you say, there is always stuff...
The panel you have got there is really great. I really hope people do turn out for it and that corona virus doesn’t get in the way.
I also agree about Voices from the Shadows. Unrest was good for awareness raising but from an educational point of view and given Jen’s journey...
A while ago there was an online talk for one hour which counted for CPD points on POTS and ME. [ATTACH] I shared it with the practice manager...
I did get IBS pre viral trigger, but my mum was very much against excess antibiotics and I didn’t have many, and not at all when very young as far...
And of course there are the severely ill people who are cared for by aging parents who do not know what will happen to them in the near future....
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