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I’m not sure if it would be fitting or ironic if a neurologist from Queen Square were to make a breakthrough [Perhaps both]. But this is very encouraging to hear. Thank you. For anyone not aware, Queen Square is where SW became interested in and arguably hijacked what he called CFS research...

I’m not well enough to read through all this atm. Is there any evidence which suggests that it might be worth people with an ME/CFS diagnosis being tested for babesia and bartonella? Are there effective treatments for those who test positive?

Does anyone know when and where the recording of the webinar is going to be uploaded?

Reading about Diane’s experience reminded me of the text from an anonymous individual “associated with the Royal College of Psychiatrists” who tried to persuade the NICE CEO to tamper with the Evidence Review for the 2021 NICE Guideline for ME/CFS...

I assume that is the same Peter Gordon as @Hole Ousia. See: https://www.s4me.info/threads/hole-ousia-its-boom-time-michael-sharpe.8701/post-155052 And this thread about a now deleted blog: https://www.s4me.info/threads/simon-wessely-didnt-want-his-e-mail-on-a-blog-here-it-is-on-hole-ousia.5001/

i wonder if he might be given a FIFA science prize.

Can someone post a link to that discussion/post please?

The quotes above are from a different thread. I’m sharing them here as they are relevant to this thread.

Yes. From memory, various ME/CFS specialists physicians have said that something like 30% of their ME/CFS referrals have been misdiagnosed. If all you have is a hammer, everything looks like a nail.

From the New Scientist article: “In August, the researchers behind DecodeME also identified variants in eight regions of the genome, including the 43 genes that contribute to ME/CFS risk, but they were unable to replicate all of them in independent datasets. PrecisionLife, however, rediscovered...

Apologies if this is a dumb question but could they have been primed by a fungal infection?

Can anyone explain in plain English what this might mean if the results were replicated? Why might the cytokine response to antigens which mimic fungal infection or superantigens be higher in people with ME/CFS?

Excellent, as always. Thank you. A couple of typos and language suggestions: “Likely” seems to be typo but I would rephrase something like: “It’s like fitting the corners and edges of a jigsaw puzzle: we can’t yet see what the picture is, but we’re starting to get a glimpse of what it might...

From The Cocktail Party by TS Eliot: “Half the harm that is done in this world is due to people who want to feel important. They don't mean to do harm; but the harm does not interest them. Or they do not see it, or they justify it because they are absorbed in the endless struggle to think well...

Thanks for correction. I guess the question is whether it exists beyond anybody’s belief that it exists?

“Enduring symptoms” brings to mind Enduring Love by Ian McEwan. The novel is presented as based on a true story of a patient with a psychiatric condition known as De Clérambault's Syndrome. It was only later that McEwan revealed that he had invented the syndrome [edit: see correction in post...

The Daily Telegraph stopped being a serious newspaper a long time ago. Unfortunately, like boiling frogs, many of its readers seem to be oblivious to its slide into post-truth populism. I don’t mean this to be a comment about the rights or wrongs of the newspaper’s political allegiances – just...

I’m looking forward to reading your end of year review @ME/CFS Science Blog. I wonder if any of the ME/CFS charities might be interested to publish it. As I struggle to keep up with research I find them to be a hugely useful and reliable resource. [edit autocorrect]

Thank you. I’ve just signed up with the Xmas25 33% discount.

As usual, I’m struggling to keep up. My unreliable memory tells me that you were critical of Binita when she appeared to be promoting micro-clot theories and experimental treatments. Do you feel she is pulling in the right direction these days? Really sorry to hear that Jo is so poorly again...