APPG minutes say: “The economic position of around £23.5bn cost to the economy of ME and ME-like symptoms was highlighted.” Does anyone know...
The problem with arguing on the basis of the diagnostic criteria is that it implies that the Cochrane review (and therefore PACE) gave us...
This reminds me of something I wrote in the a few years ago in the NICE Guideline thread: I know Caroline Kingdon, as she has visited me...
Good article. Plus a link to Emily’s fundraiser for AfME at the end which is good to see. Thanks to the journalist, Julieanne Corr, and to James...
I don’t know if this has been mentioned on the thread but I’m guessing that the UK ME Biobank’s NIH funding may be at risk. AFAIR that majority of...
Cholestyramine is referenced as an effective treatment in a review of treatments for Chronic Inflammatory Response Syndrome. Thread here:...
I wonder if it would be possible for them to update their paper.
Thanks for the feedback. I will try to incorporate @Hutan and @Nightsong’s suggestions into the draft without making it too long. I decided to add...
According to Hilda NICE pays for it in England and the Health Departments pay for it in other parts of the UK (ie Wales, Scotland and NI): I’m...
Perhaps something like: To ask the Secretary of State for Health and Social if he will review the government’s relationship with Cochrane through...
I asked Hilda on bluesky: https://bsky.app/profile/hildabast.bsky.social/post/3likkk7n3vs22 Hilda: “In England, NICE pays for the national...
Re-reading the Cochrane statement (https://www.cochrane.org/news/cfs) I’m minded to change the wording to “Cochrane’s decision to renege on its...
I could ask her to submit that as a separate question.
Thanks. It’s ref 2 in my post (https://www.cochrane.org/news/cfs) Perhaps: “the editor-in-chief acknowledged that the review was out of date and...
Further to my posts and the responses above I have drafted the following written parliamentary question which I am minded to ask my MP to submit....
I contacted AfME to ask if fundraisers on platforms such as Justgiving and Facebook can be restricted to supporting their research work. Ruth...
There are parallels between Fiona Fox’s appointment as director of the SMC and RFK’s appointment as US Health secretary. Without straying too far...
From scanning this paper I’m not at all convinced that CIRS is a syndrome which can be differentiated from ME/CFS. However, it is interesting that...
That is interesting. I wasn’t aware that ariprazole is reported to have anti-fungal properties. (See:...
BlueSky post from Whitney Dafoe: https://bsky.app/profile/whitneydafoe.bsky.social/post/3lif4veeww22g: “I started eating real food again in...
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