Search results

I am sorry that you are stressed out by what I said but being a scientific forum, I am trying to discuss the medical reasons to induce a coma, side effects and so on related to ME. The topic is about inducing comas in ME patients and I was responding to that. As I already stated I do not know...

You are right, I do not know the medical details of said person. I do know that medically induced coma’s are a last resort thing and are done if a person is at high risk of severe brain injury — like from extreme inflammation from injury, bullet wounds, in certain cases of epilepsy. I also know...

The body isn’t at complete rest in a coma, there is a lot going on related to adverse effects and the body coping with coma. Respiratory drive is often lost which means a patient would need mechanical ventilation. Gut motility is very much reduced which can cause issues. Hypotension usually...

It would have to involve barbiturates or similar to keep you under or some kind of state of hypothermia. Then there is muscle wasting, malnutrition, bedsores, possible complications like pneumonia. I think 24 hour care in a hospital would be too costly especially when there isn’t any evidence...

This is why I would like him to explain the reasoning behind his request for pre/post blood testing. So why is he not testing to “destruction” other anecdotes provided by patients as to what has put theminto remission? Why CCI all of a sudden and nothing else? This could be hugely destructive...

I am not saying that viruses and antibodies are connected to ME. I believe JenB said her bloodwork was much different after surgery related to viruses or antibodies or something. I thought the nanoneedle stuff has been put on the back burner. That being said, unless Davis does some kind of...

Doing bloodwork doesn’t make sense to me. What is he looking for? It doesn’t make sense that neck surgery would eradicate viruses or make antibodies disappear. How would one say they are connected just from bloodwork. None of this makes sense to me (and many others) and why Davis is doing this...

This is truly perplexing. Why is Ron Davis giving credence to any connection of ME to CCI? By asking for blood samples it appears that he is. It would appear that donation money is going to be wasted on this. WTF. I feel like I can’t trust him anymore. I feel bad for Jen as she appears to have...

If carried on long enough, a debate can push people with opposing beliefs to a deeper level of understanding. This thread has helped me understand the different views of people here. I appreciate and value the differences of opinion. JenB’s comments have been helpful as they clarify her...

@JenB Are you planning to get any genetic testing done related to EDS?

Indeed you have. I guess I just have a different take on the importance of anecdotes and their use. I think in terms of responsibility vs irresponsibility, it’s early days for any kind of definitive statements related to a relationship between CCI and ME especially on a site like MEpedia.

What constitutes ‘loads of anecdotal evidence’ and when do anecdotes become worthy of becoming scientific evidence? I think anecdotes are helpful in aiding researchers to decide what to study (this happened with Rituximab). Without large controlled research studies you can't come to a conclusion...

This comment by a person with ME on an ME forum exemplifies the impact of Jeff’s, Mattie’s, and Jen’s statements So now most patients are going to be diagnosed with CCI based on the statements made by three people. I do think some care should be taken here. Words have power. I know they mean...

Therefore, this article is supporting that people diagnosed with CCI experience fatigue and their fatigue is resolved by surgery. It does not include ME patients. Fatigue is a symptom of a huge number of illnesses/diseases, should we extrapolate that all conditions that cause fatigue overlap...

A typo, doesn’t really make any difference though.

I have looked at the following thread that was linked on this thread to another forum. https://forums.phoenixrising.me/threads/tracking-cci-aai-mri-treatment-outcomes.62720/ It appears that out of 29 votes, 18 have indicated that they have tested 'positive'. I am confused by the significance...

This seems a bit extreme just because a very small minority of ME patients (< 20 patients out of millions have had symptoms disappear via traction/surgery -- what would the percentages be here?) Here is a warning that perhaps @Hip does not realize but treatment with neck traction is...

Jen B. . Why not There are many illnesses where the symptoms overlap with another illness and you don’t actually have both diseases. The important thing is that Jen has found what was causing her symptoms and found relief but does she need to claim CCI caused her her ME symptoms and with...