Search results

You can add: 1. Action CIND held #RUN4ME and raised over $10,000 for ME Research in Sept 2019. 2. Action CIND has hosted several webinars on various ME topics. A few of note were with the Workwell foundation (another coming in March), Dr Alain Moreau (3 times), Linda Tannenbaum of OMF and...

Thank you. We had a combination of things. Each participant paid an entry fee and we had I think close to 60 participants. (We wanted it around 50 for the first year). We asked each participant to get sponsors. Some did and some didn’t. We had one corporate sponsor that helped get things goings...

I think things are changing in Canada. Awareness is growing and now with a 5yr grant to build a national research network necessary structures are being developed. We need much more than we raised but it’s a good start. I think we should be hopeful given recent events. I’m also noticing that...

An update for you. The run was held on the 14th and was very successful. Even the weather was perfect. The funds are still coming in but we’ve grossed over $10,000. The fundraiser at website actioncind.crowdchange.co is still open for donations if anyone is able to help nudge us up a bit...

That is because our board has not been able to select the project to receive the money yet due to a number of factors. We are waiting on a number of external factors that we have no control over. (Eg potential projects we know about but they are waiting on external approvals). Also with this...

Action CIND is hosting a 5K/1K run/walk and silent auction on Sat Sept 14th. Goal is to raise funds for ME research. Details, registration and donations can be made at Actioncind.crowdchange.co

The Toronto doctors are quite knowledgeable. BC now has Dr Nacul which should improve the situation there. We recently met with our federal Minister of Health asking for more funds for research so we can only hope she comes through.

Donations may or may not help me but it should mean that one day new cases will diminish or at least be quickly diagnosed and treated so this ceases to be such a devastating illness. For those that can’t afford to donate you can still raise funds for the cause by using things like amazon smile...

It was mentioned by a participant in our webinar on IAFME on Jan 24. I had the participant give me the link and I forwarded the link to Alexandra Heumber that evening (Eastern time). She dealt with it when she got into the office in the morning as high priority. Shortly thereafter I got word it...

Can you explain the “big problem”? They have only one vote at the table and therefore cannot directly influence any decision. The toolkit was raised with them andI understood it was taken down until it’s fixed. Did this not occur? Please send new current info to me when they go back to old ways...

If anyone would like to be added to our mailing list, please send an email to info@actioncind.org. I will be sending out an email with links to the webinars and slides as soon as I can get them all uploaded. You'll be sure to be notified if you are on our list. I will also be posting it in a...

We'll post a link to it once we can get it uploaded so you can listen to it if you missed it. Not sure where the best place is to post this. Dr Moreau officially announced the ME symposium in Montreal Quebec May 3-5 2018. It will be patients, scientists and clinicians. So save the date. I have...

Reminder ME Research webinar Tues Dec 5th at 2pm EST with Dr Alain Moreau. Register here https://attendee.gotowebinar.com/register/2490352442583274499 There will be a ME symposium scheduled for early May 2018 in Montreal Quebec Canada. A Q&A session will follow Dr Moreau’s presentation.