I do totally understand people's concerns the past being what it is but none of the materials and initiatives I have seen and am aware of were...
The two specs I am aware of both entail medical staffing and are not the OT led services in current practice. Without going into further detail I...
Tbf there is actually a published draft government plan in the form if the "Interim Delivery Plan" that was consulted upon. It's weak and the...
There For ME have launched a campaign called "#FundThePlan" in response to the Ashley Judd Response to the parliamentary questions about (not)...
The new Health minister overseeing the Delivery plan...
[MEDIA]
Fwiw to answer your questions on allergies. my 3 nut allergies and hayfever. (confirmed by hospitals testing) all predate my ME and appears to be...
I wonder if this relates to this protocol also from Birmingham (Institute of Applied Health Research) ? I'm not familiar with the institutions...
The key thing I've yet to find a really good but very concise paper on is a robust well argued and referenced summary of is the body evidence...
I get the impression that in the UK they're not really funding anything at all on MECFS (aside from decode) because they think "there is a cure...
I'm horrified. There definitely seems to be disproportionate representation of BPS views, which get described in detail repeatedly without any...
Wow. They must have a good chunk of that part funded to be in a position to announce it publicly. So very exciting!
In their defence... "- I would be lobbying government for better care and research" - They are doing this far more than is visible to most...
I think they said something would be produced at the end of their financial year (March/April I assume) covering the whole of 2024 to end December.
The was no suggestion of any form of scientific medical recommendations being made from the group it was just to share/collate and feed back...
I don't see it in that light. The panel on movement was merely intended as an off the cuff concession to appear to address the repeated complaints...
I bailed at the 2 hour mark, which was already way past my limit. An awful lot of effort was made by very ill people to get maybe a millimeter of...
I did receive a zoom link today.
I received my magazine today and have emailed the relevant address asking for a link to the AGM. Not sure if I will manage it healthwise even if...
Its been interesting to observe my normally very healthy husband as he recovers from Covid. He's been reporting "pooping out" in energy following...
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