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  1. Ben McNevis

    United Kingdom: Scotland NHS Lothian ME/CFS clinic

    It's been ongoing for years ME Association complacency and A4ME complicity ? Jon Stone, Son of Sharpe is prefixing many syndromes with "functional" https://pn.bmj.com/content/9/3/179
  2. Ben McNevis

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Can we expect an assault on NICE draft guidelines? =AZW8JbOddQXaaU14eVZZGr0FXxRqOQltHGVLZE2YQdcFzt43o6vh_KZD17C6oDlzXX2Iix8p8FxO8VHIbb-ktnuommlhr4YKLcuIfFdfLYHJU-Lw5-TN6-s3eJvZx4T5qIyqUpGivQC9WteucesdznVeAacH8m-I1L2rYvrtIlgYXlJw-eNDSVxqWS5BTiMmFsI&__tn__=R]-R']#DrWoof works in close proximity...
  3. Ben McNevis

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Paul Garner @PaulGarnerWoof · Jan 25 I had Long Covid & met Canadian consensus criteria for ME/CFS. I have recovered: I feel that I have looked down the barrel of the ME/CFS gun and disarmed it. I write this to my fellow longhaulers #LongCovid #MECFS #postviral #longhaulers...
  4. Ben McNevis

    United Kingdom: Sheffield ME & Fibromyalgia Group News

    I Believe? Is this a valid position to take?
  5. Ben McNevis

    Psychology Today: What We Need to Know About Chronic Fatigue - Joel L. Young M.D.

    His Twitter feed doesn't get much attention either https://www.psychologytoday.com/ca/blog/when-your-adult-child-breaks-your-heart/202008/what-we-need-know-about-chronic-fatigue
  6. Ben McNevis

    University of Liverpool survey: 'Emotional Distress in Chronic Fatigue Syndrome', 2019

    Use VPN and different email if you want a second go Survey is loaded with trackers
  7. Ben McNevis

    Zoster sine herpete - Shingles without a rash. Familiar to anyone?

    Does anyone understand how GPs perceive the missing link in "You had shingles" - "You have post-herpatic rash" - Do they rally believe that zoster vanishes? I met emphatic, responsive GP recently, but this was one of the elephants in the room
  8. Ben McNevis

    Thread for all minutes of the UK CFS/ME Research Collaborative [CMRC] Executive Board Meetings

    Is @Action for M.E. any more than a conduit for fifth columnists? A4me are currently targeting new and naive patients/parents/practitioners in Scotland. Their much vaunted, well funded "Education for GPs" is #invisible
  9. Ben McNevis

    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    This caught my eye https://www.fatiguesuperconference.com/buy-the-conference/ Fatigue Super Conference I'll need to detox and optimise my chi before I'm up to reading any of it Or maybe all the smiley power poses sapped my last sixteenth of a spoon...
  10. Ben McNevis

    Royal College of GP training facility (2018)

    Sorry about the confusion, it was at end of a day when I should have stopped earlier. I struggle with typing and speech recognition not so great when washed out. Had been on a copy and paste bender. Post was hitting near 3000 views and 1500 engagements over course of a day...
  11. Ben McNevis

    Improving Access to Psychological Therapies (IAPT) - The Need for Radical Reform, 2018, Scott

    Revealed: How patients referred to mental health services end up back with their GP 2 November 2018 GPs are being left to deal with patients let down by counterproductive IAPT targets...
  12. Ben McNevis

    Tinnitus poll: Do you experience it?

    I feel like my spine is a cello string and my skull is the soundboard :ill:
  13. Ben McNevis

    BBC Radio Scotland: John Beattie show will feature discussion of ME/CFS, 14th Feb 2018

    Mr Kipping PwME Recording of BBC Scotland's John Beattie radio show talking ME & PACE https://soundcloud.com/mr-kipping
  14. Ben McNevis

    Proposed Letter to NICE

    Iain McGinn
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