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The dysregulation model is most likely a reference to an assumed dysregulation of the HPA axis, for which there are no tests available, as I was informed by Sue Pemberton, during my brief time as an outpatient at Leeds CFS/ME clinic. As to the practical application .. it will still likely be a...

"Grading Activity Manual - (Reprinted with permisssion from Fighting Fatigue: a practical guide to managing the symptoms of CFS/ME)" - is the title of a handout issued by the Leeds & West Yorkshire CFS/ME Service in 2012. Fighting Fatigue was written by Pemberton S and Berry C, Hammersmith...

If anyone is going to today's event, do say hello .. just booked my ticket, 'n heading out my door shortly. Thanks to all involved in setting this up. Wishing everyone improved health, and every happiness. :)

Pretty much agree with all the above, but would like to add the following: as compared with the following twitter quotes from Prof M Sharpe on the https://www.s4me.info/threads/michael-sharpe-skewered-by-johnthejack-on-twitter.3464/page-15#289, in regard to the 'non-use' of actometers. and...

Indeed .. many thanks to NDT and Anil (@Grigor if memory serves?), and brought back some happy memories. I was fortunate enough to see an NDT2 live performance in April 2016 in Bradford, UK - was one awesome evening of dance, and link to some trailers of the performance can be found here for...

Perhaps the following extracts taken from https://dxrevisionwatch.files.wordpress.com/2018/04/bdd-3.pdf will further help some? I will break into three further posts for ease of reading? If able, I would certainly recommend reading this submission by Suzy and Mary in its entirety; worth the...

Dear Woolie, Must be down to you being a 'yes-person' and/or your altruistic tendencies then .. tell me it ain't so, (not that I'd believe you anyways muttering under my breath.) ;) Yours sincerely, Nina Wishing everyone improved health and every happiness. John :)

The press release is not from the authors themselves, but is a release by K-PAX .. further discussion can be found here Russell. Wishing everyone improved health and every happiness. John :)

Do you have any further updates about this study Russell? For my part, I'm wondering if the study discussed here on our forum - Mechanisms of chronic pain and fatigue [Trial in progress, April 2018] - is relevant? It is uncannily similar in concept to the 'add-on' study, that was outlined by...

Second donation done. Sincere thanks for all your work on our behalf @dave30th. Wishing everyone improved health and every happiness. John :)

On a perusal of the link provided by @Andy, I noted that her last project - Bibliotherapy for Premature Ejaculation - an article published in 'Sexual and Relationship Therapy', May 2017 (also published earlier in November 2015, and May 2016). At least the abstract notes the following: So...

@Dx Revision Watch Do you have a link to this latest document dated the 10th April 2018, to which you refer? I have just been on the ME Research UK website, and this latest document no longer appears to be on the site; the latest entry in their 'latest news section' refers to the Forward-ME...

Yep! And to think there is already an event planned right on their doorstep in Bristol. :banghead: There is more information to be found here and as linked to in @Cinders66 original post. For those interested, you can find a linkedin to the profile of Alexandra Heumber - Head of International...

Similar to John Mac .. also only in my right ear, but also intermittent through each day, due to some sort of positional issue and/or a suspected increase in inflammation; the pressure against my skull is damned unpleasant at its worst, but does pass on laying up for longer than usual. I was...

@Tal Thank you for continuing to engage with us all here on this forum, and for taking the time to post further information, regards your experiences, in response to questions posed. As I'd noted in an earlier post, I do hope you continue to maintain your improvement over the coming months and...

Always enjoyed my visits to the 'The Duck and Drake' in my formative years/misspent youth (take your pick) .. had a great choice on the jukebox to go with the great beer and company. In latter years, would be the same and/or The 'Stanley and Audrey Burton Theatre' to see some Contemporary Dance...

About sums it up for my experience Barry, and what I think you are describing is fatigability. This is not the same as simply feeling tired, and as one would experience pre-illness. As I've mentioned in times past, feeling tired is most definitely not my central issue, and feeling tired does not...