Thanks, also for passing on your discoveries, as those things are worth knowing. It is very helpful to know about the 30 day time limit, meaning...
Thanks for your good advice JBK, I am trying to relax and not to get too overwhelmed by it. I am subbed with Benefits & Work so no problem there...
Good luck @MrMagoo . I "need to claim Universal Credit " apparently, letter just arrived today. Am still trying to understand it all but the...
Well I feel for them, as a video it is nicely shot and edited, credit to Grant Wakefield. Tells Rosie's story respectfully, as well as her...
I have always taken the approach that other people start from a place of unknowing regarding ME, just as I did and its my job to lead them through...
For me the video was spot on. They got the salient facts about PEM right which it goes without saying is a nightmare. Still recovering from...
Update. Hop tea is something else which seems to help reduce heart arrhythmia (HA). More food diary detective work. I noticed a day whan I had...
Update, I managed to get away from migraine bouts by a regime of linseed oil, turmeric and lysine supplements. So naturally Murphy's lawyers made...
I have problems standing from sitting down or crouching, where the blood drains from my head and vision and cognition grey out. I can lose...
A lot of people complain about similar. Hit me harder in the early years and took some getting used to and learning to dial down my reactions....
re OP, imho one potential lead is the claim from nanoneedle experiments and other sources that healthy cells in ME plasma become ME like and...
The appropriate context being Milgram and a perspective on obedience and conformism, because people will say what they believe they are expected...
Do you think I should write about it @Trish ? Maybe I will blog it one day just for my own satisfaction. Hardly anyone ever reads my stuff though,...
I think placebo is potentially dangerous when trying to manage the reality of ME because it can prompt suppression and masking of significant...
its frustrating, I think there is potential in the DecodeME data and the LSH&TM biobank data, if someone can work some AI magic with it while we...
After ten years undiagnosed it took another fifteen for me to unravel the mess my mind had got into trying to cope with the affects of ME on my...
@Karen Hargrave has just published a very moving piece on substack by Karen Galpin about caring for her daughter Sophia who has severe ME. Title...
The question I am asking myself is how many of the 250k estimated prevalence have a solid ME diagnosis? It took me ten years to get an ME...
Maybe he can help with AI interpretation of Decode ME data once it is released.
I see and what is the empirical test for "functional gastrointestinal disorder"? There is none. It is a diagnosis arrived at by failing to...
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