Yup, stunningly wrong. I dont think these people understand ME/CFS at all. I wouldn't really want to read anything they publish. But the...
I have mentioned this before but I think research criteria for ME/CFS should move beyond clinical diagnostic criteria. I can best describe this...
Just logging this article (courtesy Dr Fluks' newsfeed) which rationally discusses the problem of misdiagnosing ME/CFS as depression. Thought it...
Outrage relates to a sense of justice in the face of injustice, an assumption of rightness, that one is justified in protesting and a belief, a...
There is stuff to unpick here. This study is based on recorded clinical symptoms, presumably diagnosed by attending clinicians and reported by...
OK, questions like this are worth asking ... and then answering. CPET means Cardiopulmonary Exercise Test ? (Not computed positron emission...
I would like it if I could sleep in but my sleep timings are easily upset by any cognitive events which involve planning, like deliveries etc...
Twice every year I am forced to shift my circadian rhythm an hour and it messes me up for a week every time. I have finally written to my MP to...
IMHO We seem to know hardly anything about our own minds and still less about how to provide good advice to each other. This is one of the reasons...
I think there is a parallel with ME management. To rehearse the argument, it is generally accepted that exercise is good for people. One...
Why indeed? Let's assume they dont. My point is from a science perspective there are pro and anti lobbies which have no science basis, of which...
This is a science forum. Both pro and anti mind training lobbies exist but I get the feeling neither are motivated by science and this Dark Side...
I means you can trust them to consider the impact of their work on ME patients with humane sympathy, Prof Jason being one himself. This is in...
One glance at the authors (Leonard Jason) and you can predict from past publications that this paper is likely to be based on a conscientious...
I wrote to my MP again. Pointed out why we need to know more about ME to help with the post covid lockdown benefits crisis. [SPOILER]
Thanks, also for passing on your discoveries, as those things are worth knowing. It is very helpful to know about the 30 day time limit, meaning...
Thanks for your good advice JBK, I am trying to relax and not to get too overwhelmed by it. I am subbed with Benefits & Work so no problem there...
Good luck @MrMagoo . I "need to claim Universal Credit " apparently, letter just arrived today. Am still trying to understand it all but the...
Well I feel for them, as a video it is nicely shot and edited, credit to Grant Wakefield. Tells Rosie's story respectfully, as well as her...
I have always taken the approach that other people start from a place of unknowing regarding ME, just as I did and its my job to lead them through...
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