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  1. rainy
    Post

    Thanks for being here

    Thank you from me too. I've been too brainfoggy to be able to comprehend or read much here for a while. When I saw a social media post that s4me...
    Post by: rainy, Sep 29, 2023 in forum: General ME/CFS discussion
  2. rainy
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Your work with posting on social media through the years is really wonderful, @Tom Kindlon. Thank you!
    Post by: rainy, Sep 28, 2023 in forum: Petitions
  3. rainy
    Post

    Lightning Process study in Norway - Given Ethics Approval February 2022

    From listening to LP practitioners, my understanding is that the goal of the LP is to give people hope, a new way of seeing their illness and...
    Post by: rainy, Sep 18, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. rainy
    Post

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    The report on women’s health has been published by the committee now, and I see that Silje Reme is one of several people that were invited to have...
    Post by: rainy, Mar 7, 2023 in forum: General ME/CFS news
  5. rainy
    Thread

    Antiphospholipid syndrome and ME/CFS

    Tweets by Fereshteh Jahanbani about antiphospholipid syndrome and ME. [MEDIA] [MEDIA] [MEDIA]
    Thread by: rainy, Dec 14, 2022, 1 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  6. rainy
    Post

    OMEGA AGM 2022 with Caroline Struthers on Medical Research : 29th Oct

    [MEDIA]
    Post by: rainy, Nov 21, 2022 in forum: General ME/CFS news
  7. rainy
    Post

    The fragile process of Homecoming - Young women in recovery from severe ME/CFS, 2022, Krabbe et al

    The authors start out laying down some expectations for what the participants’ stories will be: profound and meaning-making. And this is perhaps...
    Post by: rainy, Nov 14, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. rainy
    Post

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    In a podcast episode after Eia and Steinkopfs debate on the news, they read an email from a follower who says Eia ‘let himself be bossed around by...
    Post by: rainy, Nov 6, 2022 in forum: General ME/CFS news
  9. rainy
    Post

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    I really don’t understand why Eia is on the Women’s Health Committee. It feels like when the government decided to make the national competence...
    Post by: rainy, Nov 6, 2022 in forum: General ME/CFS news
  10. rainy
    Post

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    You have such a talent for making these videos, Adam. Thank you so much. I remember looking for informative YouTube videos on ME when I first got...
    Post by: rainy, Sep 12, 2022 in forum: General Advocacy Discussions
  11. rainy
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Since it's listeded under predisposition factors I understand it as a hypothesizing that over exertion leads to ME. I wish they would stop...
    Post by: rainy, Sep 10, 2022 in forum: ME/CFS research news
  12. rainy
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    [MEDIA] Patient feedback isn't a bad thing.
    Post by: rainy, Sep 10, 2022 in forum: ME/CFS research news
  13. rainy
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    I always find it weird to single out type A personality as the main thing that would make someone overexert themselves. If you're talking about...
    Post by: rainy, Sep 10, 2022 in forum: ME/CFS research news
  14. rainy
    Post

    JK Rowling new book — chronic illness references

    Publishing a book during a pandemic that comes across as mocking vulnerable people that have to be careful and shield themselves is an......
    Post by: rainy, Sep 6, 2022 in forum: General ME/CFS discussion
  15. rainy
    Post

    JK Rowling new book — chronic illness references

    The type of trope above makes me feel like people think disabled and sick people having needs, like door openers and being careful about viruses,...
    Post by: rainy, Sep 6, 2022 in forum: General ME/CFS discussion
  16. rainy
    Post

    Norwegian Directorate of Health: course for sleep problems

    There were so many parallels between the way they are treating insomnia patients and the way ME patients are treated. They talked about how there...
    Post by: rainy, Sep 1, 2022 in forum: Other psychosomatic news and research
  17. rainy
    Post

    Norwegian Directorate of Health: course for sleep problems

    I listened to a webinar which was aimed at health professionals training in this course. The webinar was by the Directorate of Health, with a...
    Post by: rainy, Sep 1, 2022 in forum: Other psychosomatic news and research
  18. rainy
    Post

    Norwegian Directorate of Health: course for sleep problems

    NTNU is planning a study on the effect of this course on sleep quality and quality of life, starting fall 2022. In the promotional video to get...
    Post by: rainy, Aug 31, 2022 in forum: Other psychosomatic news and research
  19. rainy
    Post

    Norwegian Directorate of Health: course for sleep problems

    From an article in Psykologtidsskriftet, by Department Director of Directorate of Health. My bolding: Insomnia severity index 0- none, 1 - mild,...
    Post by: rainy, Aug 31, 2022 in forum: Other psychosomatic news and research
  20. rainy
    Thread

    Norwegian Directorate of Health: course for sleep problems

    I just saw this «sleep well» course by the Norwegian Directorate of Health advertised on Facebook. From a powerpoint on the Directorate of...
    Thread by: rainy, Aug 31, 2022, 9 replies, in forum: Other psychosomatic news and research
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