Search results

  1. 2

    Article in Vogue: 'Re-Entry syndrome'

    Reverse culture shock is a term widely used in the global expatriate community. Having lived in seven different countries in my life, and had extended spells in ‘Home’ (passport) countries, I Have experienced it. Basically it means to me to not expect plain sailing when I land back in what was...
  2. 2

    UK - Resources for help getting food during quarantine and other supermarket related problems

    USA used to do paper, then a choice, on recent visits it’s almost all plastic. Often They have a carousel with the bags loaded on so very efficient (e.g. Walmart). But almost impossible to use own bags as I’d prefer. only at Aldi or Lidl do you get the option of pack your own. My hunch is...
  3. 2

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Yes, you have to ring. IMO they make the phone number very hard to find on the website, but once I find it, I usually get thru straight away. If you have an invoice from a previous delivery, the number is on that for returns, but it’s the same number. The delivery charge is the same whether...
  4. 2

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I wasn’t aware of the price increase till I went to book a delivery slot a couple days ago, and saw that priority slots had jumped from £2 to £4.50. So I checked and it’s across all types of slots and started 1st August. Annoying but nothing to do about it. As I’ll be shielding due to cancer...
  5. 2

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    Over 10 yrs ago, when my son was first ill with, he had chronic and severe headaches, diagnosed as cluster headaches. Along with medication, his consultant suggested we might try acupuncture as the most likely to help of the various alternative therapies. I did quite a lot of research myself and...
  6. 2

    Persistent fatigue following SARS-CoV-2 infection is common and independent of severity of initial infection July 2020 Townsend et al

    I've had a query from a friend's son who is a journalist in America if there are any figures on numbers of longhaulers? The only thing I could suggest was this paper, so I've referred him to the forum, as it's a public thread. Are there any others we are aware of? He wants figures, not just...
  7. 2

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks for posting this @Dolphin. I wasn’t aware so have queried with our committee to ask if others knew the community service was advertising. Dismayed to see one of the options was for a mental health nurse, along with OT or Physio. FYI applications closed last week, link in tweet didn’t...
  8. 2

    The Science Bit: Post-Covid syndrome, Myalgic Encephalomyelitis, and the recurring pseudoscience of mass hysteria, July 2020, by Brian Hughes

    I take his use of ‘pro-social behaviour’ to mean something similar to the golden rule, that we try and treat others as we would ourselves. By wearing a mask I’m primarily helping protect others.
  9. 2

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Really impressed by this. You could hear him slowing dow and struggling to find words!
  10. 2

    UK - EHRC (Equality and Human Rights Commission)failed to consult its own disabled advisers before snubbing DWP deaths probe: July 2020

    Having been made redundant in April due to company restructuring, and having been engaged since in a mostly futile search among the very few posts I could even try for, I was astonished at this news. There are almost no jobs out there to be had, full stop! The situation has not in any way...
  11. 2

    Did the Spanish flu cause ME?

    Worth remembering that a century ago most families had someone who was chronically unwell as this was long before antibiotics and vaccines. So my guess is a lot of those who didn’t recover fully we’re just absorbed into the family care system, hidden away.
  12. 2

    DecodeME - UK ME/CFS DNA study underway

    Assume someone has commended Tom Whipple and the Times for this coverage? I’m not on Twitter.
  13. 2

    UK - NHS England online tool and clinics for long Covid.

    I was about to post a link and saw several others and already done so, and also alerted @PhysiosforME ‘Exercise tutorials’.... what could possibly go wrong! :(
  14. 2

    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    My only comfort was the parental grapevine indicated most of the parents also found him difficult to deal with. None of the more junior staff dared to stand up to him. Only when I was able to get past him and appeal to the head did we get suitable provision. We were very fortunate to have good...
  15. 2

    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    Our issues stemmed from the SENCo, who two years into the saga proclaimed he’d never know anyone to stay ill for that long, and from then on disbelieved the medical letters and applied more and more pressure. When the second child fell ill, we were sunk from the start, even tho first child had...
  16. 2

    e-coli infection and leaky gut

    :hug: Hugs and prayers, @Graham . You bring so much good cheer and logical thinking to this group.
  17. 2

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Nor did the doctor who told her just to get back to work! :(
  18. 2

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Not sure if this story has been posted yet: https://apple.news/ApnhrWMlcRC2f0ylfgjtPsg What struck me is when she attended a&e, she was told her symptoms were just a panic attack, and to get back to work as soon as possible, even tho she can’t sustain anything near normal.
Back
Top Bottom