Search results

I do experience both the flu-like feeling and the poisoned feeling. A description of my experience of "feeling poisoned" is in the members-only thread for this topic, here: https://www.s4me.info/threads/poisoned-feeling.43442/post-659195 I have experienced none of the elements of the...

Illustrative Thrown-under-the-Bus Infographic...

I have found reading on e-ink screens really helpful, but, as @BrightCandle says, it doesn't help with reading more - just makes it more comfortable. Wanted to mention that there are e-ink computer monitors (even in colour), so you could potentially move all your screen time to e-ink. I have...

Sorry, it took me a long time to find those two links I just posted and hadn't seen your reply when I mentioned the gadget attaching to the headboard of the bed.

I have used a UGREEN tablet holder (doesn't seem to be available new anymore, just mentioning in case used ones are around) mounted to the top edge of the headboard of my bed for years. My phone, tablet and ereader all fit. Whether that makes for comfortable reading depends partly on the height...

The deletion of these comments must be very recent. There is a comment count at the top of the right column on the Cochrane page for the review (https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub9/full). When I last looked just a couple of weeks ago, it showed 25 or 26...

News from the Dutch Federation of Medical Specialists (Federatie Medisch Specialisten) on the development of new guidelines for ME/CFS. That the process had started has been known for quite some time. The names of the members of the guideline committee had already leaked out, but I think this...

A new comment, addressing today's development has been published: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub9/detailed-comment/en?messageId=446141743

And while all the criticism levelled at Larun et al. 2019 is now somehow outdated, the review is suddenly the very latest and greatest from Cochrane. Or so it will appear to outsiders. Maddening.

I just saw a new editorial note has been appended to the review (see https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub9/full), which, while transparent about "ceasing the production of a full update of this Cochrane review", now gives the Larun et al. 2019 review a...

Thank you for explaining this aspect of the meaning of "fee" to me, @Kitty. English is not my first language. According to my lawyer's advice, the payment for participation in research would be considered "inkomen uit overige werkzaamheden" ("income from other kinds of work", i.e. work not done...

Thank you, @Kitty for explaining your situation in the UK. I'm in the Netherlands. Your benefits system is considered draconian over here, but it seems in at least some respects, the system here is even more limiting.

I voted "It depends". Apart from methodological issues, something that needs consideration - especially in the context of ME - is the effect of payments on disability pensions and benefits, as well as related legal risks resulting from accepting the fee. Having recently weighed participation...

R. Vermeulen lost his licence as a physician in 2011. F. Visser (of the Visser and Van Campen studies into OI and cardiovascular problems in people with ME), who was the cardiologist of the practice, left. Vermeulen continued working at the centre and was listed as "head of research" on their...

Hi, The Lifelines cohort is a cohort of (from memory) about 160,000 people in the north of the Netherlands that Lifelines claim are representative of the Dutch population as a whole. That whole study population received questionnaires, amongst which, since 2014, a questionnaire that (according...

Perhaps you are right and asking that question does not add value. That question isn't enough to elicit the information I'm interested in. So let me rephrase: "The project description on the ZonMw website makes it clear that you will only evaluate those Lifelines participants who already...

To add to that excellent list of questions by @Solstice , @FMMM1, if you were to write to Cindy de Boer again, you could also ask (so we have that on record once and for all in explicit terms): "Will you determine CCC, ICC or IOM status in all Lifelines participants or only in the group already...

This page of Lifelines Wiki provides more information on that: https://wiki-lifelines.web.rug.nl/doku.php?id=cfs_diagnostic_score&s[]=fatigue Note this statement: "The CFS diagnostic score can be requested in the Lifelines catalogue or by mail (data@lifelines.nl)."

Just to finish posting the relevant passages from the "Programmatekst" document, here is the continuation of the text posted and translated above. This comes under a new section header and is text explicitly defining how the criteria should be used within the research programme. In Dutch: In...

The explainer box attached to that diagram reads as follows (the crucial sentence was already highlighted by @Medfeb above): Dutch: English: I'm only just noticing that the explainer box, while also saying that Fukuda defines the outer limit (of the intended population), acknowledges that...