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  1. Subtropical Island

    Cleaning tips and recommendations for cleaning products

    Will be keen to hear from anyone who’s had a robot vacuum for a few years and still likes it / it works? That’s what I find off-putting: the idea that I’d have to replace it.
  2. Subtropical Island

    Seeing is Believing: Identifying the “Ideal Manifestation of Hidden Disability” in Ontario’s and Quebec’s Social Benefits Tribunals, 2025, Malenfant

    Describing it as a cognitive bias is very useful thank you. My experience is that being the ideal victim is still not enough. Partly because being the ideal for the first half of a lifetime includes not being a complainer and making light of difficulties etc. and partly because this bias leads...
  3. Subtropical Island

    Review Histamine Intolerance, the state of the art, 2020, Comas-Basté et al.

    Found this when looking up histamine intolerance (as someone I know has been telling me I should see their specialist for histamine intolerance in case that’s what I need …and I’ve been reluctant to do all that work for another bit of hocum). Today I am having a bad flare of symptoms that might...
  4. Subtropical Island

    News from Aotearoa/New Zealand and the Pacific Islands

    Just found this myself on TVNZ on demand “It stole my life” Mysterious fatigue illness traps people in their bodies (16:28) But I can’t figure out how to share it
  5. Subtropical Island

    Evidence-based medicine

    First I heard that EBM is not simply requiring that medicine be based on actual evidence (as opposed to hearsay and opinion). Hmmm…. Re-evaluating a lot of things said in the past couple of years ….
  6. Subtropical Island

    Perivascular glial reactivity is a feature of phosphorylated tau lesions in chronic traumatic encephalopathy, 2025, Osterman, Murray et al

    Maybe a dumb question but what is ‘multiplex immunohistochemistry’? Are we talking about taking a sample of brain tissue out and staining it? Or are we talking about dosing someone/their brain with chemistry to then pick up in imaging? Does imaging mean CT/MRI or something else again? Or are...
  7. Subtropical Island

    Auto-inflammatory diseases – What can they tell us about ME/CFS?

    This is a very old thread but I’m not sure I want to open a new one for this. I’m thinking about it again because I’ve suddenly got a fairly strong immune response (first a hives-like rash which blew up into bullae but all in the discrete area of skin where I used an adhesive bandage, and also...
  8. Subtropical Island

    What high-quality resources should S4ME produce for PwME, clinicians, researchers etc.?

    Looks like this covers my comment already. I’m really only talking about the symptom. It can be brought on or exacerbated by being in PEM. I wasn’t looking at it from the point of view of a trigger but I would say that it can compound in the factors that do bring PEM on. My point when picking...
  9. Subtropical Island

    What high-quality resources should S4ME produce for PwME, clinicians, researchers etc.?

    I think you already got it? ‘Difficulties with sensory processing’. The impairment is with processing it and therefore it becomes overwhelming and painful. It’s not that we’re less able to tolerate the same amount of unpleasantness, it’s that we’re impacted more
  10. Subtropical Island

    News from Aotearoa/New Zealand and the Pacific Islands

    Lovely to discover MERespite, an organisation whose list of what the fundraising is for actually looks like it cares, is not so very far away. Nice to know
  11. Subtropical Island

    Absence of BOLD adaptation in chronic fatigue syndrome revealed by task functional MRI, 2024, Schönberg

    Maybe your hearing protection was better? Or better fitted. (With two to three layers of sound protection I think it could be much reduced but if any of them isn’t well fitted, or good quality for the types of sound, that would make a big difference). Also whether in PEM at the time makes a...
  12. Subtropical Island

    Covid-19 vaccines and vaccinations

    Just noting that this says that various vaccines had some statistically significant association with GBS but that Pfizer did not. It reminds me that generalising across multiple vaccine types can be good to scale up the numbers but it’s worth drilling down too. Reminds me that it’s good there...
  13. Subtropical Island

    Covid-19 vaccines and vaccinations

    I need to avoid reading tooo much today (other essential things I need to use up my quota on) but I have been wondering how they distinguish adverse effects from the vaccination vs effects from getting an infection? For example: I know someone who believes they have had long term significant...
  14. Subtropical Island

    Association between acquiring SARS-CoV-2 during pregnancy and post-acute sequelae of SARS-CoV-2 infection, 2024, Bruno et al.

    “Non-pregnant females with SARS-CoV-2 infection were more likely to be older and have comorbid health conditions. ” Hang on, did they not adjust for age and comorbidities? I can get why they might report the basic data that way but what about reporting the adjusted figures too? The sample size...
  15. Subtropical Island

    Cass report, quality of evidence in evidence-based medicine and double-blinding

    Listened to a brief stats podcast (BBC radio “More or Less”) about how they assessed the evidence (due to lack of RCTs). It’s called the Newcastle-Ottawa Scale. (Wikipedia has https://en.wikipedia.org/wiki/Newcastle%E2%80%93Ottawa_scale) Here’s a random (did an image search) copy of the sorts of...
  16. Subtropical Island

    News from Aotearoa/New Zealand and the Pacific Islands

    Brief intro to some apparently newly published (Dr Warren Tate Otago University) research (will have to check elsewhere to see what it is as the article gives very little info) Links between Chronic Fatigue Syndrome and Long Covid found...
  17. Subtropical Island

    Immune cell proteomes of Long COVID patients have functional changes similar to those in ME/Chronic Fatigue Syndrome, 2023, Peppercorn, Tate et al.

    posts copied from the News from New Zealand thread Brief intro to some apparently newly published (Dr Warren Tate Otago University) research (will have to check elsewhere to see what it is as the article gives very little info) Links between Chronic Fatigue Syndrome and Long Covid found...
  18. Subtropical Island

    Covid-19 vaccines and vaccinations

    Just picking out a few bits I wanted to know (in case others do too): On the lunar-cov19 series (efficacy, adverse effects):
  19. Subtropical Island

    Diane Shipley: Knowledge of Missing Out

    Needed this today. Thanks for posting it when you did. My dog is barking with FOMO excitement at the sound of people jumping into the water on a hot day. I have KOMO (or SOMO - sick of) myself. (Nice to know it’s something anyone might feel, when it seems ungrateful, and yet all I want is for...
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