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  1. Ruth
    Post

    Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue, 2019, Antcliff et al

    Stopping an activity when symptoms increase is still not the ideal baseline for pacing. I would say that much ideal pacing is preemptive ie...
    Post by: Ruth, Sep 14, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Ruth
    Post

    ‘I can hardly breathe’: Exploring the parental experience of having a child with a functional disorder, 2019, Hulgaard et al

    As a parent carer, I suggest that this study is an abominable abuse of parents, and that reading it risks engendering serious fear and trauma, as...
    Post by: Ruth, Jul 30, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Ruth
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Does that mean it's not possible or just that the posts need approval and are being routinely rejected?
    Post by: Ruth, Jun 2, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Ruth
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Yes. For MS and his dismal co-author to frame their argument around social and moral inclusivity is nauseating in their audacity. I hope it is...
    Post by: Ruth, Jun 1, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  5. Ruth
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    How do you know this?
    Post by: Ruth, Jun 1, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Ruth
    Post

    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    You have confirmed my suspicions about Dr Johnstone, who I have not heard of. He couches and qualifies like the best of the BPS crowd....
    Post by: Ruth, Mar 24, 2019 in forum: General ME/CFS news
  7. Ruth
    Post

    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    Post by: Ruth, Mar 24, 2019 in forum: General ME/CFS news
  8. Ruth
    Post

    The invisible burden of chronic fatigue in the community - a narrative review (2019), Fatt et al

    Very good point to give feedback on. The difference between 'ME/CFS', which is what the report is meant to be making recommendations on, and...
    Post by: Ruth, Feb 15, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Ruth
    Post

    Australia’s NHMRC ME/CFS Advisory Committee draft report released for public consultation

    Thanks for all your hard (and sometimes frustrating) work on this important report. International responses would be great.
    Post by: Ruth, Dec 21, 2018 in forum: General ME/CFS news
  10. Ruth
    Post

    Australian Health Minister meetings

    I agree. I find this approach frustrating. With access to the Minister so limited, it's plain common sense that Australian groups and individuals...
    Post by: Ruth, Dec 17, 2018 in forum: General ME/CFS news
  11. Ruth
    Post

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    Thank you
    Post by: Ruth, Nov 16, 2018 in forum: General ME/CFS news
  12. Ruth
    Post

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    Thanks Simone. Thanks for your help with the letter. Yes, there was a strong personal imperative here to call out Sharpe's behaviour and his...
    Post by: Ruth, Nov 15, 2018 in forum: General ME/CFS news
  13. Ruth
    Post

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    Post by: Ruth, Nov 15, 2018 in forum: General ME/CFS news
  14. Ruth
    Post

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    It's an end quote.
    Post by: Ruth, Nov 15, 2018 in forum: General ME/CFS news
  15. Ruth
    Post

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    Agreed
    Post by: Ruth, Nov 15, 2018 in forum: General ME/CFS news
  16. Ruth
    Post

    David Tuller tours Down Under!

    Thanks for publicising this event. I am the organiser. We know this is very short notice but it was unavoidable. It will be David's only public...
    Post by: Ruth, Mar 19, 2018 in forum: General ME/CFS news
  17. Ruth
    Post

    Primer for family, friends and care providers - WIKIE MEpedia

    This Primer is very similar to the one written for the general public. There is one short very general article by Susan Jackson on what to do when...
    Post by: Ruth, Jan 18, 2018 in forum: Caregiver support
  18. Ruth
    Post

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Fantastic letter. Thank you for that mammoth effort. It will be hard to ignore such clear breaches of TEDX s own standards.
    Post by: Ruth, Dec 15, 2017 in forum: Open Letters and Replies
  19. Ruth
    Post

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Post by: Ruth, Dec 15, 2017 in forum: Open Letters and Replies
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