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Stopping an activity when symptoms increase is still not the ideal baseline for pacing. I would say that much ideal pacing is preemptive ie stopping activity before symptoms increase. Chunking an activity into a number of parts with rest breaks is often the only way to complete it.

As a parent carer, I suggest that this study is an abominable abuse of parents, and that reading it risks engendering serious fear and trauma, as it quotes verbatum in graphic detail, forcing parents to harm their children. It should be prefaced with a trigger warning for other parents when...

Does that mean it's not possible or just that the posts need approval and are being routinely rejected?

Yes. For MS and his dismal co-author to frame their argument around social and moral inclusivity is nauseating in their audacity. I hope it is torn to pieces by bioethicists and others.

How do you know this?

You have confirmed my suspicions about Dr Johnstone, who I have not heard of. He couches and qualifies like the best of the BPS crowd. 'Predominantly'physical etc. And to hope that Liddle's outpouring of bile could 'generate a more rational debate' was certainly not his intention.

Very good point to give feedback on. The difference between 'ME/CFS', which is what the report is meant to be making recommendations on, and fatigue, chronic fatigue, MUS, etc etc etc is a central issue the report has not addressed. Factors such as unique PEM symptoms are strong arguments. This...

Thanks for all your hard (and sometimes frustrating) work on this important report. International responses would be great.

I agree. I find this approach frustrating. With access to the Minister so limited, it's plain common sense that Australian groups and individuals agree that the larger representative groups should be doing this critical development work.

Thank you

Thanks Simone. Thanks for your help with the letter. Yes, there was a strong personal imperative here to call out Sharpe's behaviour and his response was as much as we could have expected given his evident lack of compassion. Thanks to everyone, especially David Tuller, for supporting me in...

It's an end quote.

Agreed

Thanks for publicising this event. I am the organiser. We know this is very short notice but it was unavoidable. It will be David's only public event in Sydney and NSW.

This Primer is very similar to the one written for the general public. There is one short very general article by Susan Jackson on what to do when someone you know has a chronic illness and one or 2 other minor references. As a carer this has no specific information and very limited general...

Fantastic letter. Thank you for that mammoth effort. It will be hard to ignore such clear breaches of TEDX s own standards.