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  1. TrixieStix

    If you had to guess ME/CFS cause, what'd you say?

    This is the conclusion researchers have come to in regards to the rare autoimmune disease I have called "Relapsing Polychondritis" (RP). Researchers now believe it to be a syndrome rather than a single disease entity and they believe that there are multiple disease pathways causing similar...
  2. TrixieStix

    Covid-19 vaccines and vaccinations

    The only data we have for these particular Omicron specific vaccines comes from testing on 8 mice which tells us almost nothing. There are vaccine experts saying that they have huge doubts about whether or not the Omicron specific vaccines will be any better than the existing vaccines. It is...
  3. TrixieStix

    Increased risks of cancer and autoimmune disease among the first-degree relatives of patients with ME/CFS, 2022, Moslehi et al

    This is my experience. I had severe symptoms for 4 years (including severe PEM at times) that were eventually diagnosed as ME/CFS after tons of other stuff was ruled out. I had SO MANY blood tests, scans, etc. But finally after 4 years I developed new symptoms that were unique and specific to a...
  4. TrixieStix

    Covid-19 vaccines and vaccinations

    Evidence that Original Antigenic Sin is indeed rearing it's ugly head? (The study only looked at people who have been vaccinated) "Previously infection-naïve HCW who became infected during the B.1.1.529 wave showed enhanced immunity against earlier variants, but reduced nAb potency and T cell...
  5. TrixieStix

    'Disability as identity' - discussion thread

    Your underestimating the current worship of "identity" and identity politics among youth currently. It is at an almost religious level at this point. The intersection of identity politics plus social media has created an environment unlike any that previous generations have dealt with. Among a...
  6. TrixieStix

    'Disability as identity' - discussion thread

    Disability absolutely is being used by people for social positioning. It is very popular among younger folks on social media. On TikTok there is currently a big fad of young people faking mental disorders for attention. That's just the tip of the iceberg...
  7. TrixieStix

    Medscape: COVID Vaccines Linked to Functional Neurological Disorders

    Thanks for asking :). I'm hanging in there. October marked 4 years since my diagnosis of Relapsing Polychondritis (and also UCTD) and I've been on a daily regimen of Prednisone, Hydroxychloroquine and Leflunomide to treat it just about as long. Thankfully the medications have decreased the...
  8. TrixieStix

    Medscape: COVID Vaccines Linked to Functional Neurological Disorders

    I do not have ME/CFS, rather I was misdiagnosed with ME/CFS for some years (actually have a rare autoimmune disease). I received one single dose of the Johnson & Johnson vaccine back in late April and not only did it make me flu-like sick for 24 hours I also experienced episodes of dizziness for...
  9. TrixieStix

    Article in Vice: The Medical System Should Have Been Prepared for Long COVID

    A large portion of the healthy population have very unrealistic ideas about modern medical capabilities. Perhaps it has something to do with soap opera style medical tv dramas where very sick and/or dying patients almost always seem to miraculously recover or survive?
  10. TrixieStix

    Critical of past research: cortisol studies

    My own experience bears out what Jonathan has said. I have a very rare autoimmune disease (relapsing polychondritis) for which corticosteroids are unfortunately the mainstay of treatment. My rheumatologist is amongst the top in her field and she will not prescribe long-term corticosteroids (even...
  11. TrixieStix

    Biologic and Nonbiologic Interventions for Fatigue in Rheumatoid Arthritis (2019). Calabrese.

    I experience the same although I am on DMARDs not biologics for my autoimmune diseases. And exercise has never once improved my fatigue, it's the opposite, I have to be extremely careful to limit my physical activity or I will pay for it. The idea that exercise would decrease my fatigue is...
  12. TrixieStix

    The biology of coronavirus COVID-19 - including research and treatments

    Thanks Sasha. I miss her terribly (she was the closest thing I had to a mother), but find comfort in the fact that she had a long and healthy life. She was extremely healthy right up until the very very end. She was very proud of the fact that she had perfect hearing, just about 20/20 vision...
  13. TrixieStix

    The biology of coronavirus COVID-19 - including research and treatments

    It seems to be more serious than solely 'side effects' in the very old and/or frail. "Norway expressed increasing concern about the safety of the Pfizer Inc. vaccine on elderly people with serious underlying health conditions after raising an estimate of the number who died after receiving...
  14. TrixieStix

    The biology of coronavirus COVID-19 - including research and treatments

    Am I correct in assuming your referring to the actual write up about the study results in 'Stem Cells Transitional Medicine' rather than the linked blog post by Paul Knoepfler in 'The Niche' given the post doesn't mention the study's claims about cytokine storms or autoimmunity? Paul Knoepfler...
  15. TrixieStix

    The biology of coronavirus COVID-19 - including research and treatments

    The stem cell science blog 'The Niche' has published a post breaking down the results and limitations of the study... "Overall this new small study is the most encouraging results we’ve seen on the cellular medicine for COVID-19 front, but there are good reasons for wanting a lot more data...
  16. TrixieStix

    Open Medicine Foundation (OMF)

    Wasn't it the whole thing about how the supposedly found something 'different in the blood' and were building the nano testers, etc. Nothing ever seemed to come of that. They hyped it all up too.
  17. TrixieStix

    The biology of coronavirus COVID-19 - including research and treatments

    I may be off base but my understanding is that vaccine effectiveness is in addition to the baseline risk a person has without any vaccine. For example if someone is considered to have a 99% chance of surviving Covid-19 and they get a vaccine that is 90% effective then they now have a 99.9%...
  18. TrixieStix

    ‘Give me back my fact: How can social science help us survive the post-truth pandemic?’, Campaign for Social Science SAGE Annual Lecture 2020

    Charlatans love postmodernism. In a world with no objective facts they can never be wrong. They can make it up as they go and you can't tell them they're wrong. Postmodernism is anti-reason, anti-logic, anti-intelligibility.
  19. TrixieStix

    The biology of coronavirus COVID-19 - including research and treatments

    Pfizer's COVID-19 vaccine appears to be in slightly less short supply than originally thought. "Many hospitals have quickly discovered that the vials they were told contained a maximum of five doses actually contain six or in some cases even seven doses. the FDA is telling hospitals to go...
  20. TrixieStix

    Ian Harris: "Surgery, the Ultimate Placebo"

    "Ian Harris explains that more than half of commonly performed surgical operations may be placebos. Adequate studies using a blinded control group are essential." "Ian Harris, a Professor of Orthopaedic Surgery at the University of New South Wales in Sydney, Australia, wrote a book titled...
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