Just to let you know that we now have a website for FUNCAP www.funcap.no
I would have loved to look at it, but I only have an android phone :( But if there is anything I can help with, let me know!
The whole process started because Norwegian welfare authorities (Nav) asked a national fatigue network to recommend a form that could be used to...
The survey is now published through European ME Alliance: https://www.europeanmealliance.org/documents/emeaeusurvey/EMEAMEsurveyreport2024.pdf We...
We are very aware of the cumulative aspect of PEM. I have ME myself, and the best analogy I know is having a current account and a credit card...
We have allready talked to researchers who want to use FUNCAP in upcoming studie, so it will probably tested soon. We have had positive feedback...
Here is the preprint. https://www.preprints.org/manuscript/202309.2091/v1
No, we are not setting a cut-off score for being able to work etc. The questionnaire looks at various domains, and having a low score in certain...
That is a good question. In Norwegian, the phrase used was "gå en kort tur". The word "tur" strongly implies that the walking takes place outdoors...
I am very happy to see this published in a peer reviewed journal. We did the survey in 2018, and published a large report on the Norwegian ME...
From the IOM report: "Symptoms can be severe enough to preclude patients from completing everyday tasks, and 25-29 percent of patients report...
<3 I know that that is the case for so many. I am one of the lucky ones, and have a life that looks normal (ish) when others see me.
We very much thing that "limits what I do the next day" means PEM. From my own experience - and from other ME-patients' - the amount of PEM Ihave...
Comments are always welcome, even though we cannot always accomodate all. The part of this survey that is about function has been trialled in...
Thank you! If you have any comments on the function part of the survey, please let me know. It is not cast in stone yet, and we are open to...
No, it is not published yet. We had very few respondents from English speaking countries. Norway (with a population of 5 million) had 3000...
If anyone wants to send me ideas or comments on the subject, they are gratefully received :) My email is: trude.schei@hotmail.com
Sorry for the late answer, I am not on this forum that much - too many things to keep track of, at times, and having a bad period, ME wise. We...
This is - so far - an informal project, and a work in progress. We are not - at the moment - trying to make the perfect form. We are merely - for...
We are working on the data. Professor Arild Anglesen is doing this in his spare time, and I have ME, and am doing this with my spare energy... The...
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