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  1. oldtimer

    Shingles vaccines, chickenpox, Shingrix

    Just to confuse things a bit, rabies is one of the many types of lyssavirus that exist around the world. They are often named after the area where they are found. Eg, European Bat Lyssavirus and Australian Bat Lyssavirus (ABLV). They are prevented with rabies vaccine. I know this because I ended...
  2. oldtimer

    Adaptive pacing : Dr Meg Arroll, psychologist and "international best-selling author"

    I think she should produce a not too indecently lucrative video for those of us who can't get the hang of the columns and rows and coloured markers for tasks that are easy, medium and hard. All to be entered daily, or was it hourly. Not to forget notebooks to be purchased as well for listing...
  3. oldtimer

    Australia: News from Emerge Australia

    Just a few thoughts: "Knowing when to expect change allows you to monitor your progress. If improvements are not occurring within the scheduled timeframe, follow up with your healthcare provider." "A treatment that works for one person may not work for another." These two sentences suggest...
  4. oldtimer

    Upper Airway Resistance Syndrome (UARS): a common underlying cause for all "chronic complex illnesses"? (ME/CFS, fibro, GWI, etc.)

    I wonder if sleeping in an upright or semi-upright position, using an adjustable bed for example, would give a quick indication of whether an obstructed airway is implicated.
  5. oldtimer

    Article: Chronic pain sufferers find relief through UK-first (virtual reality)treatment

    I made the mistake of getting a bit excited when I saw the thread title - pain is one of my predominant symptoms and I've been told it is FM. Whatever. Now I could cry with disappointment. Every time I get sucked in by this garbage I remember why I completely stopped reading anything to do with...
  6. oldtimer

    PEM discussion thread - post-exertional malaise

    I'm struggling to follow things as always but, if the definition of PEM is a worsening of symptoms after physical or mental activity, wouldn't there need to be discernible symptoms to start with in order to tell if they had become worse? I have assumed that apparently well people who become...
  7. oldtimer

    Improvement of Fatigue and Body Composition in Women with Long COVID After Non-Aerobic Therapeutic Exercise Program, 2025, Miana et al.

    I agree. I think even a healthy person of average fitness would find the programme a challenge. I know someone with LC with fatigue, who was quite fit beforehand but who can only work a few hours a week now. This person is unable to walk the dog around the local park anymore. They would laugh...
  8. oldtimer

    Improvement of Fatigue and Body Composition in Women with Long COVID After Non-Aerobic Therapeutic Exercise Program, 2025, Miana et al.

    Each session included 10 min of warm-up (3 min of specific exercise, sitting on the wall, 1 min of anterior plank on elbows and feet, 50 sit-ups, and 1 min of sustained sit-ups), 40 min of trunk musculature training, and 10 min of cool-down (breathing, stretching, and muscle relaxation). All...
  9. oldtimer

    Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines

    That's what I thought. I would love to believe Sandler is just the token BPS person. It looks like a balanced and expert panel to me, not that I know anything more than what is written on the list though.
  10. oldtimer

    Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines

    Thanks for the link @Simone. Good to see a couple of Emerge people involved.
  11. oldtimer

    News from the USA, United States of America

    Or if you can't access The Times, https://archive.md/6XkSq
  12. oldtimer

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    I was prescribed 6 months of azithromycin because I had a high mycoplasma load somewhere or other. I don't recall how it was tested for. It was 30 years ago when I knew nothing and asked nothing, and I trusted the integrative medicine doctor who actually believed me and did his best to help my...
  13. oldtimer

    Heat vs. Fatigue: Hyperthermia as a Possible Treatment Option for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2025, Hochecker

    I haven't red the paper but the mere thought of heat as a treatment fills me with horror. I spent a few days camping in the tropics a month ago and it has taken until now to recover. Not that cold is the answer either.
  14. oldtimer

    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    I play scrabble every day with a friend in England who has fairly advanced non-Hodgin lymphoma. Last year she had rituximab treatment and underwent the first infusion in a hospital room with a lot of others receiving infusions for various things. Not one patient or member of staff wore a mask...
  15. oldtimer

    News from the USA, United States of America

    The link didn't work for me. This one does: https://archive.md/xnKTA
  16. oldtimer

    Preprint Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest, 2025, Charlton, Wust et al

    I would really like to know this because it's one of the rare consistent parts of my ME experience.
  17. oldtimer

    [UK] A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform

    I remember this too. I think it was with David Tuller. Edit: Found it - from about 4.40 to 5.52.
  18. oldtimer

    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    I thought this blatant confession of love-bombing (a brain-washing technique) was priceless: "It is key to have complete compassion and understanding for their experience and then to explain the science. When you do that, many people respond favorably - despite this not being mainstream ideas."
  19. oldtimer

    News from Aotearoa/New Zealand and the Pacific Islands

    I really hope this gets a lot of airplay. Glenys Rumsey is inspirational!
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