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https://www.cambridge.org/core/journals/the-british-journal-of-psychiatry/article/rise-and-fall-of-the-biopsychosocial-model/A31DAA3BED6569F6080A1DF2C1D15A64 I found this more general historical look at the biospychosocial model by S Nassir Ghaemi 2018 very interesting. This article by Drs...

Perhaps you could include Nigel Speight? He's still very active in fighting for young people with ME and their families and is still working as a NHS paediatric consultant.

There was an interesting presentation at the IiME conference about the importance of selenium in relation to thyroid hormones. It really struck me because it related closely to my daughter who developed Hashimoto's at around the same time as ME.

@Andy, there seem to be some people who thought they were registered and were waiting patiently and watching out, but haven't heard anything. My daughter and a number of the people she knows seem to have slipped off the email list lately. She has re-registered now, but I thought it worth...

https://meassociation.org.uk/2022/08/howes-goudsmit-prize-awarded-natalie-boulton-josh-biggs/ The ME Association announces they have awarded me and Josh the Howes Goudsmit prize for our work on Severe/Very Severe ME/CFS. I'm sad that Graham has missed this, as he gave me a lot of help and...

That is great to hear that the trailer for Voices made such an impact. There are transcripts for some of the Dialogues videos already up: The Prologue, two PEM ones and Activity Management/Pacing. There are links or download buttons under the videos. I will prepare others at some point...

Thank you very much, to all of you.. My family usually sighs a sigh of relief when we get to the end of February, but this year there is not much to be relieved about in the world at the moment, and it makes our daughters' futures all the more perilous.

I'm afraid that how much it gets seen is entirely up to others. I have worked flat out on this project for the last four years, including working completely unpaid on the Tangled Story for the last year, to save the remaining funding for paying for the final professional editing work to turn it...

THIRTY YEARS OF DISDAIN by Mary Dimmock and her son https://www.dropbox.com/s/fkyl3uyr9x6twyh/Thirty%20years%20of%20Disdain%20-%20Summary.pdf?dl=0 the short version is very useful background too.

Thanks Trish. I shall feel happier when I get to the end of the Wellcome form and can get the final money to pay Josh for his work on the last film! There are some difficult questions like listing the key findings from an evaluation of the project - including impact/benefit to the audience...

Perhaps. It is clear enough in the video in her name strap and I was trying to keep to the specified word count.

I think Vimeo will translate into just about any language from the subtitles in English! So I hope it will work.. Will have to wait and see...

Dialogues update - I've made pdf transcripts of four of the videos - Prologue, longer and shorter PEM videos and Activity and Energy Management - Pacing. They can be found below the videos. https://www.dialogues-mecfs.co.uk/wp-content/uploads/2020/03/Prologue-transcript.pdf...

Thanks to your really excellent proof reading.

"A dangerous model abandoned as NICE seeks to reform care for ME/CFS patients in 2021" - The revised Prologue is also on youtube... Now with less music.. The last video will be released on Wednesday on the Dialogues website.

We can arrange for any of the videos to be shared on other charities websites, as long as there is a link back to the project website.

The last video "The Tangled Story of ME/CFS: Controversy, Denigration and Ignorance" is nearly finished. We just recorded some voice-over sections for it and for the revised Prologue video, and now I can pretty much leave it to Josh to work on the audio quality, as all the content is in place. I...

Peter Gladwell was the physio there last time I looked and I have heard good things about him. He came along to the evening event with Mark VanNess, Nigel Speight and a showing of Voices from the Shadows over 7 years ago. I think he's on the Cochrane panel with Todd Davenport.

WE've just put up the latest Dialogues video Prologue... ME/CFS - 2021. NICE-a turning point becomes a debacle. https://www.dialogues-mecfs.co.uk/films/prologue/ It has a dedication to @Graham at the end. 10 mins long. @Tom Kindlon @JohnTheJack

Another whole complication of this situation with PEM is orthostatic intolerance - 'doing' nothing except being upright - and underestimating how much PEM that causes! I've interviewed someone oblivious to this, but who then could make a big difference to how they could function when they...