Merged https://www.bmj.com/content/310/6990/1330.2
We need to prove harm so we can get treated with consideration to prevent deterioration. This is especially true for permanent deterioraters.
That paper said only 30% of patients reported PEM as their main symptom. Doesn't sound right to me.
I explain it like this. If you just go over your PEM threshold but then rest it off you will usually be ok. However if you go over your...
https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/symptoms/
Just to be clear, the diagnostic void in the title of my thread was aimed at permanent deterioraters - patients who get worse from a known trigger...
Using weak inclusion criteria. Not using questionnaires that measure PEM duration / Severity or crucially how easy PEM is triggered. Using ill...
I was thinking about sensory intolerance that gets worse due to exposure of the offending input so a consequential progression rather than a...
https://journals.lww.com/painrpts/fulltext/2023/08000/low_dose_naltrexone_for_treatment_of_pain_in.3.aspx - Outcome data did not indicate any...
[MEDIA] I am highly skeptical of this, I was already in disbelief at the number of illnesses claimed to be treated by LDN, but now cancer? Seems...
Pretty much, semi deterioraters get worse for months, may be a few years, whereas permanent deterioraters like me never fully recover. I realise...
I had a very gradual deterioration over many years, slowly getting worse with pushing past my deterioration threshold, although there were some...
What can we do to get deterioraters such as myself a suitable diagnosis that fully reflects their symptoms? It's become clear to me that there's...
What do you class as genuine ME then? Also which pre-Covid prevalence figures do you believe because the 250,000 figure often cited is derived...
https://jnnp.bmj.com/content/83/3/248
Citation needed.
Can you elaborate? I've never heard of a information sheet in the context of clinical trials before, how would the information sheet in my trial...
If I had that kind of money, the first thing I'd fund is a CBT trial using objective outcomes (actigraphy) before, at 3 months, and after 1 year,...
What do you think the correct number should be?
Unpopular opinion: I think the pre-Covid 250,000 figure was an over estimate, 250,000 would have been about 0.4% of the UK population at the time,...
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