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Don't the GMC have rules about lying to patients?

She is claiming that you can reverse Dementia with diet and supplements.

It's disbelieving doctors that cause that, and I'm pretty sure the disbelief predates the term neuroimmune in the context of ME, by decades. Which ME charity gets that kind of money?

The Goldacre Effect - The Goldacre Effect is a condition where other wise skeptical people hold psychological conceptualization for unexplained physical symptoms and behavioural treatments to a far lower standard of evidence than what would be accepted for physical conceptualization and physical...

I'll add that during PEM your Deterioration Threshold (the amount of activity it takes to permanently lower your PEM threshold) is lower than usual. Also as you push through PEM the further you go, the longer it takes to heal. Heal time is how much daily energy you are allocated and if you...

Simon says: That's just proof that the patient is catastrophizing, the inflammation would go away if only they would think the correct thoughts.

Spoon Theory has no concept of damage, a better model needs to be proposed. Rationing sounds less childish than Spoon Theory.

I don't like the term baseline because not everyone has baseline fatigue, I prefer talking about PEM thresholds, PEM, duration, and PEM severity. We also need terminology for damage. How much damage would walking 3 minutes over your 10 minute limit, cause? It's not the same for everyone. How...

Disagree, I think it's because doctors simply don't believe their patients. Not sure where you got this from.

Could be malicious incompetence.

I've never had a doctor who fully believed my illness was real and back in 2011 I was pushed in to turning to Sarah Myhill who's treatments didn't make any difference to my health. It's said that jumping to the conclusion that ME is a neurological illness or multi-system illness pushes patients...

Merged post ************* Dismissing chronic illness: A qualitative analysis of negative health care experiences: https://pmc.ncbi.nlm.nih.gov/articles/PMC6567989/ "Ascribing illness attributions to a psychological etiology and recommending a course of treatment based upon these assumptions...

Moved post ------------------ https://www.pnas.org/doi/10.1073/pnas.2510486122 Found this the other day but wasn't sure where to post it, mods can move it, assuming somebody hasn't already posted it. Wasn't there a general thread for papers that didn't deserve their own thread?

I can't listen to this for health reasons but would like to, can anybody who has heard it, summarise what was said? In my experience ME patients in both sides of the pond, in all health care systems, are getting a raw deal and facing disbelief.

I've not experienced this, can you give examples of what claims and where this happens? Were you talking about Reddit? Edit: Typo.

My impression of a typical Doctor: Hmm, Malaria. These patients aren't literally suffering from bad air, let's give these hypochondriacs a new name, CFS. (But don't call me junior, I'm a resident)

They'll give out a CFS diagnosis to any body presenting with any kind of long term fatigue. We need more gatekeeping and stricter criteria in general practice not just in research.

Disagree. I never had ADHD as a kid but gradually developed symptoms starting in my late teens. I now struggle to view television shows while retaining what has happened and who is who, I keep drifting off in to thinking about something else. Edit: I do have Autism but that was life long...

It's difficult to write a description of ME that suits everybody because the diagnosis of ME covers such a wide spread of presentations, however I object to calling it a fluctuating condition because that marginalises and feels dismissive towards those of us who experience LTSE - Long Term...