£23.5bn is in excess of other figures I've seen for ME/CFS in the UK. On the Government's interim delivery plan web pages they cite a report that...
A letter to the editor, commenting on a recent study which linked glucocorticoid therapy in COVID-19 patients to an increased risk of long COVID....
Copied post and some subsequent posts moved to this thread APPG minutes from 5th March:...
APPG minutes from 5th March: https://appgme.co.uk/wp-content/uploads/2025/03/2025-03-05-APPG-on-ME-Minutes.pdf
Tom Molmans' letter to the editor: Link | PDF
[12] is this predictive-processing paper.
The patient cohort: The retreat from the cognitive behavioural model is interesting, even if the authors do favour a predictive-coding model...
MDPI's approach to special issues is quite well known & has always struck me as another example of borderline predatory methods from that...
DW story based on: "Macrophage peroxisomes guide alveolar regeneration and limit SARS-CoV-2 tissue sequelae" (Wei et al, Science 387;6738) also...
There have been some quite perturbing stories on Bluesky recently of people being cajoled into undergoing the LP by NHS clinicians; there seems to...
Seems to be a psychobabble/neurobabble app. The company that produces the app is "Freeme Health Ltd" - looks like a one-man operation. Further...
Just had a brief skim. Something that this does (inadvertently) demonstrate is just how poor a lot of fatigue research actually is. The authors...
On several other NHMRC pages relating to ME/CFS (link, link) there is an email address that begins me_cfs@ (with an underscore, not a dash)....
Abstract: Long COVID represents a significant global health challenge with an unclear etiology. Alongside accumulating evidence of mitochondrial...
"Spring update from Physios for ME": https://www.physiosforme.com/post/spring-update-from-physios-for-me
Abstract: We proposed that cerebrospinal fluid would provide objective evidence for disrupted brain metabolism in myalgic...
May also be worth drawing it to the attention of the University of Auckland's research ethics committee.
Canary story about someone campaigning for a harms reporting system for non-pharmaceutical interventions such as CBT & GET - "Government hit with...
Full text: Link | PDF
The index case in Afrin's book was a patient with polycythaemia but who didn't have the genetic markers usually associated with polycythaemia...
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