1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Search Results

Search Again
Page 1 of 36
  1. Inara
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    My lawyer pointed out to me that in the "social legal German world" (she is a professional in medical and social law and has specialized on ME,...
    Post by: Inara, Nov 9, 2021 in forum: Diagnostic Criteria and Naming Discussions
  2. Inara
    Post

    Muscle fatiguability after exertion

    Could be sth. else, too, like neuromuscular. (Wasn't there sth. myasthenic-like that behaves like that? And in order to find it it needs a certain...
    Post by: Inara, Oct 29, 2021 in forum: Post-Exertional malaise and fatigue
  3. Inara
    Post

    Pathophysiology of skeletal muscle disturbances in (ME/CFS): 2021, Wirth, Scheibenbogen

    I think it can, having the periodic paralyses and e.g. mutations in other ion channels in mind. You can do cellphysiological experiments where you...
    Post by: Inara, Apr 24, 2021 in forum: ME/CFS research
  4. Inara
    Post

    Recommend soft safe earplugs, such as a soft medical grade silicone that immediately returns to its default manufactured shape [edited]

    I had some of these made for me, and they hurt me terribly.
    Post by: Inara, Mar 5, 2020 in forum: Home adaptations, mobility and personal care
  5. Inara
    Post

    Recommend soft safe earplugs, such as a soft medical grade silicone that immediately returns to its default manufactured shape [edited]

    Hi Samuel, I‘m using these: https://www.aponeo.de/03185431-wellnoise-ohrenstopfen-blau.html Wellnoise Silikon I don‘t know if they‘re available in...
    Post by: Inara, Mar 4, 2020 in forum: Home adaptations, mobility and personal care
  6. Inara
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I make this experience with every doctor. I always have to make a risk-benefit assessment myself.
    Post by: Inara, May 31, 2019 in forum: ME/CFS research news
  7. Inara
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Some people are worried about the safety of the community. Some others don't see a reason for it. And some don't care.
    Post by: Inara, May 30, 2019 in forum: ME/CFS research news
  8. Inara
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I feel like @Jenny TipsforME and some others here about the tone of the discussions. But thanks, @TiredSam, for pointing out that obviously...
    Post by: Inara, May 30, 2019 in forum: ME/CFS research news
  9. Inara
    Post

    Solve M.E. webinar on 28th May re Whole Genome Sequencing and Analysis of ME/CFS

    This is a fascinating talk indeed, and I am very curious and excited about what these researchers will find. The 10 patients were collected from...
    Post by: Inara, May 29, 2019 in forum: General ME/CFS news
  10. Inara
    Post

    The troubled history of psychiatry

    Because they make money instead of needing it...
    Post by: Inara, May 28, 2019 in forum: Other health news and research
  11. Inara
    Post

    Rituximab and placebo response

    I found it in the paper: "One hour before infusions, all patients received premedication with 1 g of oral acetaminophen, 10 mg of cetirizine, and...
    Post by: Inara, May 28, 2019 in forum: Drug and supplement treatments
  12. Inara
    Post

    Rituximab and placebo response

    Didn't ALL participants get cortisone and antihistamines, too? I may misremember. As indicated here (I don't have access to the phase 3 trial...
    Post by: Inara, May 28, 2019 in forum: Drug and supplement treatments
  13. Inara
    Post

    Biomedical articles on MEpedia - purposes and pitfalls

    I have to agree with @Alvin. Science is about looking in many, many directions, may they lead to dead ends or not.
    Post by: Inara, May 27, 2019 in forum: MEpedia
  14. Inara
    Post

    Genetic Predisposition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Study 2019 Perez Nathanson Klimas et al

    Me neither, but I don't have 23andme data. (Although that shouldn't be the reason why I don't find it.)
    Post by: Inara, May 24, 2019 in forum: ME/CFS research
  15. Inara
    Post

    Jen Brea: My ME is in remission

    What I mean: Normal ranges are not only a problem re. CCI, but in any other disease that is diagnosed via normal ranges, because normal ranges...
    Post by: Inara, May 22, 2019 in forum: General ME/CFS news
  16. Inara
    Post

    Jen Brea: My ME is in remission

    But then being diagnosed with anything doesn't necessarily mean something. Where does that take us? And what's medicine's answer to that?
    Post by: Inara, May 22, 2019 in forum: General ME/CFS news
  17. Inara
    Post

    Jen Brea: My ME is in remission

    But this is a problem with every normal range. Assuming a Gaussian distribution makes it only slightly better - and while there exist outliers in...
    Post by: Inara, May 22, 2019 in forum: General ME/CFS news
  18. Inara
    Post

    Jen Brea: My ME is in remission

    It cost me 0€. The surgery itself - that is expensive.
    Post by: Inara, May 22, 2019 in forum: General ME/CFS news
  19. Inara
    Post

    Jen Brea: My ME is in remission

    In my experience this happened often. But I might pick the "interesting" ones. :)
    Post by: Inara, May 21, 2019 in forum: General ME/CFS news
  20. Inara
    Post

    Jen Brea: My ME is in remission

    Yes, it's a common experience for me, too.
    Post by: Inara, May 21, 2019 in forum: General ME/CFS news
Showing results 1 to 20 of 714 Next >
Search Again
Page 1 of 36